Secondary breast cancer Her2 positive

Hello Anya84 

I am Brian one of the Community Champions here at Macmillan. I have just noticed that your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying your post will be "bumped up" to the top of the page and I hope seen and answered by other members of the secondary breast cancer group.

I wish you well going forward.

Best wishes - Brian.

Hello, I completely understand why you feel like that.

I have metastatic disease to my lung which was diagnosed in 2021. I had 12 weeks of chemo alongside herceptin and perjeta and have continued with the targeted treatment every 3 weeks since then. My scans show Ned which is great and mostly I am quite positive but every so often I get quite down about it all and worry about the treatment becoming ineffective. But.... Compared to the first year after I was diagnosed I am very laid back now. I was so depressed to begin with and I don't think there is enough awareness of stage 4 disease in general for people to understand it. 

I hope you are feeling a little more hopeful now. I don't often reply to posts but I wanted you to know that there is hope. And new treatments coming down the line. 

Take care. X

I am HER2, 5 years on.  Different meds, 5th line.  Someone said to me early on  control what you can,  let the rest go. Has been great advice for me.I was never a worrier though i have become more of one since diagnosis, but mainly about family.

None of us know what's going on until the oncologist gets the scan reports and can compare the scan to the previous one.  Not them, not us. We have absolutely  no control over that.  Then they take control with  whatever course of action they feel is necessary, and we can take control by asking questions  and making a decision.  

You may not be able to stop worrying whether it will stop working, but  its something you can't control.  So, for me, i dont worry about scans, or the results.  It seems like a complete waste of energy and time.  We are all different though, i know.

There are lots of treatments available to us, and we are  living longer with this disease.  METUP UK have a list of treatments for the different types of SBC on their website. You, however, are NED at the minute.  My advice would be to try to stop worrying and enjoy being NED, life and your new baby. If you can't stop worrying you should perhaps talk to someone, Macmillan, Maggies,...

Good luck with the current meds, and your general health. Xx