Enhertu

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Hi, 

I've been off line for a few months. I was just wondering if anyone is on Enhertu and what's their fatigue like.

I can't cope, standing and moving requires every effort and strength I have.

I get enhertu every three weeks (which is doing good so far)  ..... but the tiredness wow... I'm slowly losing my sanity.

Thanks for reading 

  • My Wife is on Enhertu at the moment and she has a lot of fatigue. They've spaced out her dosing to 4 weekly now, mainly due to low neutrophils, but it's giving her a little more time with some energy as well.

  • I am on Phesgo for mets after chemo and so far so good. However, Enhertu is next if I so choose.  I see palliative care and they have been wonderful.  They are all about managing side effects such as pain and fatigue.  They have much more leeway in prescribing medications, including opioids and even Ritalin and the sort to manage severe fatigue.  It has changed my life because I was in constant pain.  I wish you the best.  This is not a fun journey but I have found it to be manageable now with the extra help.  Hang in there.  Did you try anything before Enhertu?