Hello,
So, firstly I hopefully aim to gain an understanding of what it's like living with someone with the above conditions.
I work full time as a trainee nurse on a bowel cancer ward, as well as caring for my elderly grandmother who has the above cancers.
Now, after caring for my grandad and my auntie when I was 16 and 17 who both sadly passed, my grandmother now is on palliative care. Due to being the only female, she relies on me an awful lot, which I do not mind at all, but I am exhausted, I work full time, I'm a trainee nurse ontop of it, I have a partner who god bless him, has been so supportive, but when someone hasn't been involved with an individual who is dying from an illness is really difficult.
My granny, has been in hospital for 7 days due to having a pulmonary embolism ( blood clot on her lung ) after arguing with the first Dr that she doesn't have a chest infection.
Since coming out, I went away selfishly for my birthday as I really needed a break, not that it was much of a break as I was really quite poorly. Me and my dad co share ( well try to) responsibilities. This is proving difficult as granny has now started to get pure nasty vocally, I understand that it is the cancer talking, but it doesn't make it any easier.
She still has full capacity and refuses any extra help from any outside professionals.
She has been prescribed some " relaxant" medication, but refuses to take it.
I am so worried that she is going to be nasty like my grandad and the effect it will have on my dad. I'm kind of the rock in the family, the one everyone goes to, but im struggling and feel so alone through this. People say at 27 you shouldn't deal with this , but granny is my world and there's nothing I wouldn't do for her. But this is utterly exhausting me and I just am at such a loss on where to turn for help and support.
But this anger, and getting such a vicious tongue and temper is breaking apart the family as I am peace keeper normally... but even I do not know where or how to deal with this one
Any group, or any suggestions would be greatly appreciated after my verbal diarrhoea!
Thank you
Hi jassy123 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like you've had a long and difficult journey so I can understand you wanting to find others who are on a similar path to you.
As the online community is divided into different support forums I'm going to recommend that you also join and post in the supporting someone with incurable cancer forum which is a great place to get support, talk about your emotions as well as practical issues about palliative care.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your granny's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007