Hi I was originally dx in 2007 age 39 with iDC in my right breast . Originally thought DCIS as I had been in a program for 9 years as my mum passed away when was 6 and she was just 27 . Anyway turns out to be DMX and lymph node removal as in 4 nodes , with chemo , various reconstruction and tamoxifen for 5 years . Over the years I struggled with BII symptoms so in 2019 I had implants removed ,both ruptured with silicone on my chest wall. Also had ovaries removed to prevent BC reoccurrence .
Fast forward to last may when I had to go for ultra sound due to lump on scar line . Turned out to be silicon deposit and showing in lymph node under left arm also ( I had been in some pain )
In March this year i noticed an increase in my neuropathic pain in my right arm ( follows lymph node removal 2007) and a little swelling in my arm pit / side or chest.
Appointment booked at doctor for referral and then noticed a small bruise on scar line on right side . This increased most days and a large swelling came up on my chest . This was believed to be an internal bleed .
Seen by breast surgeon , ultra sound and immediate biopsy that day as didn’t have appeared of a heamatoma . It showed a mass behind my chest muscle , rare they said and hard to get to so surgery atm not possible .
Since then I’ve had CT scan , PET scan , bloods and awaiting angiogram to stop the bleed. I am in significant pain but off work now for the foreseeable and bleed looks to have stopped due to not working in a very physical job .
Last Monday I was DX with 13cm tumour!!!!!! , several others in my chest , in my lymph’s in my neck and chest and distant spread to left under arm lymph’s , with a bit on my bone in chest also .
Oncology appointment and started on Letrozole and first chemo tablets Palbocilicib this coming Monday . Pain is moderate with Tramadol and Nortryptaline and I feel very supported with the breast care team at York as I did before .
I am feeling positive once I get on full treatment I will do well . I am told there are ladies on this for 2-2.5 years and one lady 4.5 years so I feel optimistic . Any tips or stories about similar treatments would be lovely . Thank you xx
Hi MandieFiver and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like you've been through a great deal and I hope you respond well to the treatment.
I'm not a member of this group but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' your post back to the top of the discussion list where hopefully it'll be easier to see.
While you're waiting for other group members to reply, it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
