Hi everyone,
Looking for some hope as I'm in a very dark place. Little about me, diagnosed in 2020 with ER positive , her 2 negative breast cancer. I had clear lymph nodes, clear margins before starting chemo, thought I had come out the other side. Ever since chemo finished had lower back pain which I kept reporting, when eventually was given a bone scan which was clear. Fast forward to now, I had a recent MRI due to my left leg going numb when sitting for a period of time, I Was expecting to be told i had a pinched nerve, I was advised they had picked up an abnormailty on my spine and hip, which has now been confirmed as secondaries. I cannot believe it or accept it, I have have felt fine, I was in a good place and now I feel as though my world has come crashing down. I can't eat, sleep, I spend most my days googling trying to find success stories of people who are still living years later. I'm still clinging to the hope its wrong(wishful I know) but they can't biopsy due to the location, my organs are clear and bloods are fine. But have to have a further bone scan next week( praying it not found anywhere else). I am 41 and have 2 children my son who has just turned 18 and a daughter turning 8. I have to be around to see them grow up and at least see my daughter through school. I have reached out to a lovely lady on here-Mary who has been living with secondaries for over 10 years which gives me hope, just hoping to hear more people who are living well with this diagnosis. Thanks all, Vicki xx
Hi Louise83ad thanks for your response, that's great news! Yes I'm on Ribociclib, start the 2nd cycle tomorrow is that what you are on? I have been to see my oncologist today and he has said real improvement in bloods so thinks it doing the job. Downside had results from full bone scan and spots also found on 1 rib and above my left knee, was really hoping it was confined to my spine and hip, none the less he has said treatment will remain the same.and is confident we can get to remission fingers 
. xx
