Mums secondary diagnosis

Hi,

       For me taking a note pad with questions and to write notes during the appointment helped.  

My mums app was more about the treatment plan and nothing else. We didn’t ask anything regarding prognosis etc. I was also conscious of  staying quiet when needed to allow my mum to ask any questions and build a relationship with the oncologist. 

I know it’s nerve wrecking but you come this far. If it helps it’s a step closer to getting your mum a treatment plan. 

ps. I found it very handy to have the contact details of the oncologist secretary. 

Sending you and your mum lots of love for the app tomorrow. Hopefully, you will feel some relief that you have a treatment plan in place and a bit of control. 

love Faith xx

Sorry to hear of your Mum's diagnosis.

It's very rare for an Oncologist to give a time frame unless it's clear that death is close. That is to say, all treatment options have been exhausted, and the cancer has spread into vital organs.

The positive side is that your mum only has spread into her pelvis, which isn't a vital organ, and there are a whole myriad of treatment options, especially if the cancer is ER+ or HER2+.

My wife is one of those that always asks for a prognosis. Her oncologist always says "ask me again in 5 years". They view breast cancer more as a chronic disease now, as it can be controlled with treatment for a very long time.

All the best, and good luck with your Mum's treatment.

Hi faith

Thanks so much for this message.  I will take a notepad with me and as you say let mum do the talking as I have a habit of taking over so I’m going sit back a bit.   Yes once a treatment plan in place I think I will feel better and mum too for going forward.     I think the last we spoke your mum was about to start treatment?   Is it going well?

love

Jacquekine

Good morning

Thank you so much for your message it’s so positive!    I think my mum is her2 so that’s good to know there are plenty of options available.  

I hope your wife is getting on ok too with her treatment.  

Thsnks again and take care

Jacqueline 

Hi Jackie,

                Wishing you the best for today. My mum seems to be managing ok with the tablets and pain seems to have got better after radiotherapy. X