Secondary breast cancer

Hi Lindz and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I'm sorry to read that you've recently been diagnosed with breast cancer which has spread to your spine and I know what an anxious time waiting to start treatment can be. I've just finished 5 months of chemotherapy and, although it seemed daunting at first, I was lucky that I didn't really suffer with any major side effects.

I'm sure the other members of the group will be happy to share their experiences with you if there's anything that you want to ask.

It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Wishing you all the best with your treatment

x

Hello Lindz. I was diagnosed with secondaries in my bones over two years ago. I am on three weekly injections of transtuzumab and pertuzumab and that has kept the cancer stable with no spread. I haven’t the stamina and energy I used to have but really feel I am living with a chronic disease as opposed to dying from it so I hope you can feel positive about your own situation and stay hopeful. Very best wishes

Hello and thank you for your message, I’ve been for my second scan today has I’ve finished with my chemotherapy and will continue on phesgo injections depending on These results (I’m petrified) trying to stay positive. My half way scan showed my treatment was working xxx

Waiting for scan results is torture! 

Hi Lindz I am similar to you - now on 3 week phesgo since finishing chemo - so far all scans have been stable and my oncologist thinks this will work for several years - and then there are alternative treatments. I know it’s hard but try to stay positive and I have no side effects from phesgo apart from a bit of itch on my arms sometimes. Yes every date nearing a scan I get anxious and if I get a pain or ache - but think on what I’ve got - I’ve got 4 grandchildren and another on way and they keep me going!

love to you and take care of yourself x

Thank you for your messsge. How long ago did you finish chemo treatment xxx

I finished the docatexel treatment in May 2021 and to date I have had 39 phesgo injections! Every 3 weeks with denenusab every 6 weeks.

That’s brilliant I had same chemo as you I finished mine on the 31st of March so just had my end of chemotherapy scan. Half way scan showed my treatment working so trying to stay positive xxx