Hi, im new here and I had a mastectomy on my left breast in July 2020. I had triple negative breast cancer stage 3. I had chemo (FEC) which left me hospitalised and filled with fear, it was so traumatic. I only had the first session. A few months later I had knitting type stitch pain, very slight but my fear made me get it investigated. In July this year 2021 scan showed bone cancer 3 lesions on my spine. I was devastated, I have been so emotional and frightened. I have agreed to start chemo again in January , I have been putting chemo off because of my fear, but with a bit less stronger drug than before but am terrified. Does anyone know what effect the drug Capecitabine or Vinorelbine has on your body? I get sick so easily. My daughter is getting married in May 2022. I so want to be there but looking and feeling healthy so I know I have to try chemo again. I try to stay up beat but every morning I cry. My first experience of chemo has affected me so much, i feel like I need hypnotised to cope. An oncologist is trying to get a clinical physcologist to speak with me. Love to hear what you think. Thank you.
Hi, I am sorry you had such an awful time on chemo, but the treatment you had is often one of the grimmest for people, albeit not to the extent you suffered. There are other very effective drugs which do not seem to cause such bad side effects. Cape has the advantage of being a pill and seems to be effective without bad side effects.
I have had AC, ECs nasty precursor, which was horrible but only four lots. I then had paclitaxel which most folk tolerate well, but it just didn’t work for me. Not all chemo is the same thank good.
You find something that works and is tolerable.
Sorry you are having such a terrible time. I had six months of FEC when I was first diagnosed many years ago and found it unbearable. I now have metastases and am on Capecitabine and find it much more manageable. Like Meirad said, it is an oral chemio, so you can take it at home. For me the biggest side effects are fatigue and nausea. It was quite bad after, so the consultant lowered the dose and gave me some anti-nausea meds. A psychologist might be a good idea. Have you tried mediation and mindfulness too? I find it helpful. Take good care of you.
Hi
I have tolerated capecitabine well. I'm on my second cycle and really don't have anything other than tiredness, really bad on day 3 of the cycle.
I didnt have chemo when I first had cancer 13 years ago but I would say that being able to take tablets at home will hopefully be less fearful and traumatic for you.
While you're waiting to see the psychologist, why don't you give the Macmillan helpline a call - they may be able to put some of your fears to rest.
Good luck x
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