Newly diagnosed with SBC in lungs and liver

Hi

Im so sorry that you have been diagnosed with secondary breast cancer and i know how scary this is for you. Please be kind to yourself and take time to process this. When are you seeing the oncology team to discuss treatment? How much support do you have in real life?

Try not to google - easier said than done i know.! At the moment until you have met with your oncologists to discuss findings and treatment, all the thoughts running through your head, are just that - thoughts. Take one small step at a time.

This site is a great place to offload. Everyone is here for you. Take care xx

Hi fhgirl,

Thank you for your reply. I'm waiting to hear from the oncology team. I think I'm still in shock and telling everyone I'm okay but I'm not. I am surprisingly calm though but so scared they'll say there's nothing they can do.

I am 57, and fit and well with virtually no symptoms bar this pesky lump in my neck and some tightening in my chest. I'm trying not to think 'why me', because that feels like I'm saying it should be someone else when all I really mean is 'why anyone'.

I have a wonderful family and a very supportive husband, but he will not talk about things with me. He just says 'we don't know'. I've asked him to let me talk; I'm not looking for answers from him. When he says 'we don't know', it feels like he's shutting me down, so we don't really talk about things at all. 

I have reached out to Dr Google and already got my fingers burnt but it's so hard not to whilst everything is zipping around in your head.

Good advice, one small step at a time. Thanks again, Kath xx

Hi

Google is not your friend. In the early stages i googled obsessively to find out the very worst that could happen until one site i found which really frightened me. So i stopped googling. And googling is only someone else's story - its not your story.

i think men can be very black and white about things. Perhaps your husband isn't shutting you down but just genuinely doesn't know  -  it must be a huge shock for him as well. 

Did you have chemo the first time around?

Sending big hugs.

xx

Hi.

Yes neoadjuvant chemo, then 2 ops followed by more chemo; but halfway through it came back again, so the chemo was stopped, I had a month of radio and then a mastectomy.

It's all been a bit rough to be honest, and now this.  I only had a partial response to the chemo and the hospital admitted they should have taken me straight to mastectomy at that point. But what is done is done. 

I think I'd be a lot calmer if I wasn't a) TNBC and b) the tumour was smaller. 

Yes my husband's shocked. I'm sure he doesn't know what to say.

Thank you for my hug xxx

That's unfortunate that it came back the first time around before you could finish treatment.

i know what you mean about the TBNC diagnosis. My heart stopped when the oncologist told me mine was. Previously she said that she would bet her hat it would be hormone receptive and that I would need hormone therapy only. Do they know your tumour is triple negative this time around?

But it seems that your diagnosis has only taken a week or so since you felt the lymph node swelling - is that right? In which case they are acting fast which means less waiting hopefully.

Its such a blow isnt it. Small steps xx

I'm so sorry you're TNBC too. All of it's awful but it seems the blows keep coming.

Yes they've moved quickly which is amazing.  No one wants the waiting do they. No I don't know if this is TNBC. I'm scared to hope in case I'm let down again.

I just want to get on with living now even if it's with cancer.

Where are you with your treatment?

Small steps xxx