Hi after 12 years of remission I was re diagnosed in Dec 2016 with secondary breast cancer in my bones, spine and lungs. I started with Capecitabane and Denosumab injections. This was much easier to tolerate than the intravenous I had the first time around. However the Palmer Planter difficulties were quite difficult to manage and did impact significantly on my hill walking and distance walking. But I found ways around it (numerous pairs of new shoes / sandals/ boots later!) and managed to cope with the side effects. Thank goodness for gel insoles and Sketchers and Udder Balm cream. I was also having daily Tinzaparin injections as I had a blood clot as a result of the chemo..... oh joy! I stopped injecting in Oct 2020 and was given Apixiban tablets instead............ phew what a relief..... I was finding it incredibly difficult to inject due to the build up of scar tissue at the injection sites.
However in December 2020 after numerous scans it was found that this treatment was no longer working and I needed further radiotherapy to ease the pain and started a new regime of Denosumab and Palbociclib. I am still on this regime and find I tolerate it really well once they got the dosage correct. So fingers crossed, long may it last...... I am well over my initial prognosis time. But I always said I was going for the 'wider variation'.
The reason for this post is I saw someone was worried about going onto Capcitabine and I wanted to respond to her concerns but was not a member......... so here I am.
