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FormerMember over 4 years ago

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25 subscribers
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I’ve never joined anything like this but I’ve found myself coming on here most days since my diagnosis. I have breast cancer which has spread to my lymph nodes abdomen and I found out this week also my bones.
I’m only 38 and to be honest I’m not sure what to expect I’ve just sort of taken things in my stride with a what will be attitude but in reality I’m absolutely petrified. I darent ask the question of how long do I have left as I’m aware that my cancer can’t be cured but only controlled.
Ive just had my 4th week of pactilaxil and will then be having hormone therapy. I’m currently suffering badly with ascities and am due to have my 4th drain next week I actually look 8months pregnant!! Just wanted to say hi really and now I’ve registered can reply to other peoples threads and ask questions I may have.
xx ️️

GodWilling over 4 years ago

Hi , I am so sorry about your dignosis and you are so young. I can't imagine how scary this must be. I hope you have friends and family who are supporting you.

I've come across a few bios of people who are living with incurable cancer who are doing well controlling it. I'm sure there is a group called living with incurable cancer that you may or may not want to have a look at. I haven't been on it but I've seen it.

Otherwise you can also post on the breast cancer group as that one is very active and you may get more responses.

Sending big hugs and good wishes.

Jude3 over 4 years ago

Hi Sazzy1, I'm new to the group and newly diagnosed too. It is scary. There is a brilliant "positive news" thread in the chat part of the forum, which it might be good to read, it's certainly given me hope. People seem to be responding well to treatments and my Consultant has said there are new treatments coming out all the time. Keep taking care of yourself xx

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