Hi All
I received my Secondary diagnosis in November 2020 and really struggling now with this second lockdown and shielding ... anyone else?
I am 50 years of age and 7 years ago was diagnosed with Primary Breast Cancer and had lumpectomy / all lymph nodes removed from one arm / chemotherapy / radiotherapy and then a reduction on the healthy breast. Following all treatment which finished on 11th September 2014 when I had my scans in the November was given the all clear. Yay - or so I thought. Who knew that Cancer was the gift that kept on giving. I developed Neuropathy in my feet and hands / lymphoedema in my arm and breast / hypothyroidism / osteoarthritis and diabetes. You would have thought that my list was long enough without the addition of secondary breast cancer and another load of drugs. I don't like the chemo drugs - they make me nauseas / exhausted and have aggravated my neuropathy. I have pain in my jaw / teeth I am not quite sure to accompany the pain in my pelvis and legs where my tumours are.
My secondary diagnosis came 7 years after my primary one. I was shocked and devastated to get the news ... I thought I was invincible and had won the cancer fight. I developed a sore back ... to the point I couldn't walk / sit or lie down without pain. Following xrays / MRI and CT scans the bone metastasis was identified in my pelvic bone and my right femur bone.
I am on a cocktail of palbociclib / letrozole and zolandronic acid infusions. This along with all my other medications for all my other ailments means that when I do walk I rattle! Lol
Lockdown is tough - I've seen 1 friend in over a year. Thank god I am in a bubble with my parents and get to spend some time with them at weekends as I am still working full time, albeit from home.
I am tired ALL THE TIME ... I think I could stay in bed now until the day I die but I know i must keep going which is why I am still working, it gives me routine and purpose as there are some days I question that. I am on my own and finding that really difficult. I have never been that successful in the relationship department and know that there is no way now that I will ever meet someone so for me, thinking about all the things I would like on my life list, I know I won't achieve as I don't have anyone to do those things with. Yes friends and family can only do so much - but I find that difficult.
I also had to come to grips with the fact I would never be a mother, I so desperately wanted to be, but cancer robbed me of that. I have days where I am so angry - why me - but then other days - why not me. It is an emotional rollercoaster as I am sure you are all on for one reason or another.
Anyhow I think I've just offloaded months of therapy - as I haven't really spoken much about it since diagnosed and my parents are somewhat in denial it is never mentioned.
I look forward to sharing and hearing more about you all xx
You have certainly been through the mill bless you and the isolation does not help. I was diagnosed in 2016 had lumpectomy was node positive so had chemotherapy and radiotherapy. It was exactly 5 years and I have been diagnosed with secondary found on a bone scan on my sternum. Total shock and devastation after all we have gone through to now be in a worse position. I am waiting for my treatment plan and the waiting is the worse part. Know you are not alone it is good to share with others who understand the physical and mental challenges we face. Sending lots of love x
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