Secondary breast cancer in the bones

Hi I’ve recently been diagnosed with secondary breast cancer in the bone too and I can imagine what you going through. I too have made enquires into wills and funeral plans and life insurance as I don’t know what’s happening or how long it’s surreal. I’ve been told by Macmillan nurse that bone cancer is quite common and there are lots of different treatments which they discussing about me at the minute. She said that mine would possibly be radiotherapy then a monthly drug infusion to strengthen the bone but as yet no idea. I’ve got appointment this week and next so fingers crossed they will tell me what’s going on. I really hope you can get your head round it I haven’t and emotions are all over as you will know. I was five years this year in remission from cancer in the breast but that’s not to be.My thoughts are with you at this awful time. 

Hi AliWtem

We all expect we should feel ill when we get a diagnosis, and feel a fraud when we don't. And it is so confusing - how can I have this when I feel well? But as you read around this forum, including the "positive stories" thread, you will find plenty of optimism and good news. My own story is of living with secondary breast cancer in bones and liver. I have been well throughout, including 2 years of chemo and now targeted and hormone therapy. You are clearly already fit and active and that can only be a good thing in terms of your response to treatment and your immune system. Preparing all the practical things for a shortened life span is sensible to get out of the way now, but then get on with living. The Living with Incurable Cancer Group is a very supportive one and evryone there will emphasise the "living" bit.

You are right it is cruel thing, and especially now with lockdown, but everything becomes normalised over time and you dont need to despair.

x

Yes I feel fine apart from aching shoulder and keep myself fit and healthy I’ve changed diet to be more healthy and I really thought I’d make the remission it’s really scary when they tell you there’s no cure and they can possibly control it I don’t understand any of it I will join that group and try to remain positive regardless of how hard it is I maybe more optimistic once I’ve had appointment Thankyou so much and please stay in touch xx

Hi, thanks and you are right about one thing after the initial shock and utter fear I’m slowly beginning to accept this as being my new normal.  There’s been lots of tears and I mean from the gut but I think that’s a good thing.  It’s so inspiring to hear and read the ladies who have lived with this and I’ve come to the conclusion it’s sad but I’ve just got to own my fear and sadness but take the treatment and do my best enjoy life where I can. Axx

Me too...feel fine, just ache. I don’t know your individual case/circumstances but for me once I got passed the initial feeling of shock, numbness, fear and hopelessness I believe this is something that can be kept at bay for sometime and there a lots of options once one treatment stops being effective. Hang in there and remember it’s good to cry and often as you like.  
One piece of great advice I received from the ladies here is don’t read Dr Google!  
I have everything crossed for your Oncologist visit. Axx

Thankyou so much it’s nice to speak to others that understand. I don’t think half of the people I talk to get where I’m coming from. Yes I’m hoping that the oncologist appointment tomorrow will set things straight for me and maybe stop the thoughts that I’m fighting with at the moment. I’m pleased it’s good to cry it seems like that’s all I do at the minute and I’m pleased there is hope. It didn’t feel that way till I joined the group. Well I won’t be googling anything else now I’ve scared myself enough I think. Thankyou for all your kind words you too are a remarkable person and hopefully we can catch up soon. Thoughts are with you xxx

Hi just an update from today’s oncology appointment they have taken me off tamoxifen and put me on letrozole and some adcal meds I’ll be going on a tablet form of meds hopefully end of next week and need bone strengthening drugs on a monthly basis they are looking at radiotherapy within the week either one high blast or four smaller ones so awaiting that decision and they have put me on liquid morphine for the pain with an anti sickness tablet alongside so that been my day hope you well and be in touch soon x

Hi.  Good that you now have your treatment plan.  I’m also going to be on letrozole and something else I can’t remember but not started yet as I’m not quite in the menopause they are inducing that (oh joy).  My pain is currently manageable with Nurofen (for now).  I’m pleased they’ve sorted it out for you   

i also have the bone strengthening jab, it doesn’t hurt, just a normal jab, no big deal. 

I hope you’re feeling a little more at ease at least with the treatments.  Axx

Hello all im cazzy and i have sbc to the bones. I was disgnosed a year ago next week i was only 32 in 33. Anything else you want to know just ask xxx

Thanks hun I’ve just done my radiotherapy the one and only dose so see what this does. Thanks again be back soon xxx