I know I have already posted a response, but reading all these responses has reminded me of side-effects which I had totally forgotten about now I am no longer on the drug.

Yes, I had sore heels and used Udderly Smooth to assist.

Yes, I did have mouth ulcers

Yes, I had a dry mouth (still do -  7 months after stopping)

These are really weird side-effects,

Hi

I have secondary breast cancer diagnosed in autumn of 2015 and on my third cycle of Capecitabine to try and deal with tumours in my liver.  I have experienced some of the side-effects experienced by Wheelie, i.e. rash which have turned into hives over my face, neck, hands, arms and legs.  These are very itchy and I am finding it difficult to go out of the house because of how I look and people's response to that.  I also have blisters on my feet.  Anti-histamines, Deprobase and E-45 help somewhat.  My dosage has been reduced to try and alleviate the symptoms.  

A friend has suggested that I cut out all dairy products and red meats.  I don't want to do this as I need the calcium and I also enjoy dairy products, especially milk and cheese.  Has cutting these out helped anyone else?

I don't want to stop taking Capecitabine as my options are getting fewer and fewer.

This is so hard.

With regards and thanks

Agnes

Hi Agnes 

I'm sorry to hear you have so many nasty side effects.  I have cut out meat and become vegetarian. I am not professing that this be the reason that I have no side effects but I feel better inside and don't miss meat as much as ai thought I would. I am still eating dairy but swapped fresh cows milk( red)  for oat milk. It takes a bit of getting used to but it's ok. 

Hope this helps a little.  I was diagnosed with secondaries last Aug 2016 after finding a lump.  I also have it in my liver and femur and pelvis and ribs although they are not causing me too many problems at the mo. I did have a titanium rod inserted through the femur in Nov 16. I'm a bit limpy and can't bend my knee now but I'm ok! Let's hope the capecitabine works this time for me too! Regards

Julie x 

I'm just finishing my 4th round of Capecitabine - i have secondaries in bones and lungs/lymphatic system.

I've had a lack of appetite but have probably eaten better than normal due to the regime of needing to eat before taking the tablets. I also have a dry mouth and feel a bit sicky at times, and I think that's largely when I get dehydrated as I'm not a great one for drinking. However, I have actually put on weight (grrr...) , possibly because of the steroids I also take to reduce the lung inflammation. 

I've avoided the dreaded diarrhoea, but am beginning to suffer more each cycle with the hand/foot syndrome, which is a pain. The oncologist is more worried about that than any of the other side effects and has mentioned several ways of trying to reduce it - lowering the dose, stopping at 11/12 days into the cycle to allow the skin longer to recover between cycles or to go onto 7 days on 7 days off rather than 14 days on 7 days off. However, at present, I'm keeping to the ' normal' regime as overall, it seems to be working for me. 

I also have some dizzy spells and feel generally feeling rubbish for the first 5 or 6 days of the tablets then better after that! 

Best wishes to everyone!

Cathy

Believe it or not I am on 18th cycle of the drug and experienced a lot of symptoms mentioned above mainly toe nail infections and tummy cramps and fatigue . My dose was lowered to 6 tablets per day as a result. Got a scan tomorrow to see if it is still working as tumour markers beginning to rise a little.. we are all experiencing how our bodies tolegate this drug . I have mets in liver gut and who knows where else .This has been a good drug for me as I have not had any full chemo treatments but I expect they will come in due course . Taste has changed And weight lost but now regained . Wish all of you the best on this drug It has been a year since I began it.

Hi Twanda,

I'm encouraged to hear that you are keeping on with Cape and generally coping.

I've just finished second cycle of Cape and seem to have what looks like a fungal infection on my big toe. What did you get to treat that please?

Regards,

Sylvia

Hello Agnes 

I was hoping that you may be able to give me some advice re rash on face whilst on capecitabine 

I have just finished the second cycle and I now have a black toenail and a horrible rash on my face. 
I have had numerous chemotherapy treatments over the last few years so I think that’s probably why I have very quickly succumbed to these side effects. 
many advice you can give me would be very much appreciated. 
I hope you are still doing ok 

thank you in advance 

Bren xxx