Neutropenic sepsis

Hi Amari and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I'm very sorry to hear how poorly your mum is and hope that since you posted this she is recovering.

I don't have any experience with neutropenic sepsis but noticed that your post hadn't had any replies yet. I typed it into the search bar in the group and found these previous posts which mention it for you to have a look through.

You could also post your question in the ask a nurse section of the online question and one of the specialist nurses will aim to reply within 3 working days. If this is something that you'd like to do clicking on the link I've created will take you straight there.

When you feel up to it, it would be good if you could pop something about your mum's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

I hope your mum starts to feel better soon

x

I had this 15 years ago but nobody told me what it was called. Only in the last few weeks, now I have serious secondaries, have I found out that I might not have survived back then (thanks family). My takeaway from this is that that I have had a lot of years I might have worried about. Now on taxol for 12 weeks and initial bloods etc look good.

Thank you for replying. I will have a look at the previous posts, I tried to search and struggled to find them. 

I may speak to a nurse around what it means moving forward as I am terrified now!

Update: mum was moved into the acute care bays and it was awful when I saw her with everything attached to her. She started struggling to breathe and she got fluid on her lungs, she wasn't eating or drinking so they had to manage everything through drips. But thankfully each day she has made little improvements; The nurses and doctors have been amazing and they were so kind when it has been really difficult. I am so grateful as I know she doesn't have the best of health, even without the cancer. She has been moved back into oncology which is good news and she can breathe much better now.

We are waiting to find out what happens moving forward and just need her to regain her strength now. Her next chemo is meant to be on 28th June but I don't think she has the strength. The acute oncologist spoke to us and explained that unfortunately these are all side effects from the chemo and they can be severe but feels that mum can continue with her treatment. Of course we want to treat the cancer but we are so scared that this will happen again and she may not be able to fight it again. I am so greatful she is stable now but also aware that she still has a long journey ahead to get discharged and back to her usual strength. It's so scary because she lives by herself so I'm speaking with the nurses to see if I can either move her to be with me and her treatment moves or if she can have support put in place. 

Thank you, I'm new to the online community and didn't know I could do that. I will edit my profile :) 

X

I'm so sorry you experienced this. Did you continue your chemo after you had it or did your treatment change? I'm glad your bloods look good and hope the taxol works well :) 

X

It happened after I caught shingles just as I was changing from one set of drugs to another (E-CMF). My dose was reduced as apparently my body couldn't cope, and with one missed dose I carried on to the end of the course.

Hi Amari

I'm glad to read that your mum is beginning to improve and I'll be keeping everything crossed for her.

To read the previous posts about neutropenic sepsis that I found for you, just click on the green writing which says 'these previous posts' in my first reply to you and the link will take you straight to them.

(((hugs)))

I'm really glad to hear that. I'm hoping mum can have some changes made and carry on with her course :)