Choosing endocrine over chemo & quality over quantity of life

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Hi I'm new to this forum.  Had rib metastasis for 18 months, current letrozole not working, been offered chemo (tablet) but I'm very reluctant as I've had a good few infections already this year and I'm pretty drained so don't want to take the risk. I'm leaning towards saying no and going for a different endocrine treatment instead.

My outlook is quality over quantity of life, but my family are trying to push me towards the chemo . I know they will respect my decision, but my head's hurting with the decision making.

Anyone been torn this way please?

Thank you Heart️

  • FormerMember
    FormerMember

    Hello im new her too and was told this week I have nodules on my lungs.

    I'm currently on chemo and waiting to hear if I'm able to have immunotherapy. Choices like these are hard to make. Hopefully someone with similar situation will answer your question. What does your oncologist think?

    Take care Vx

  • Hi, to reassure you I’ve been on palbocyclib which is a chemo tablet and it’s been very easy.  Everyone is different of course, and I was nervous starting them, but they are very manageable and for me they’ve had no impact at all.  My bloods were a bit low the first few sessions but that readjusted itself.   Ax

  • Hi , hope you're not feeling to poorly with your chemo MuscleMuscle oncologist thinks I should at least try as I won't r allowed it in future if i choose hormone therapy. I'm tired of fighting tbh. I have utmost respect for those of you that do, I'm just drained already.

    I hope you get your immunotherapy Hun. Lots of luck, stay strong xx

  • Thanks for this! Do you have the bum injection with that as well? So pleased to hear it's been good for you Muscle xx

  • No, I have Letrozole and denusumab (bone strengthening injection) as well.  The bum jab is similar to Letrozole.  To be honest I get more side effects from Letrozole in terms of slightly achy joints. The chemo tablet is a breeze I forget I’m on them.  Still very active and waking the dog miles every day.  It’s not as scary as it seems as has been effective up to now. Many ladies here are on palbo or similar and have had a positive experience xx

    • This is good to know, definately giving me more to think about now as I was definitely leaning towards just hormone therapy. I've been told I need the bone strength treatment and didn't know what thMuscle was, so thanks for saying it's an injection. You've been really helpful, thank you, and really glad you're having such a good response to treatment Muscle xx
  • Hi Liesel, I have just started the pablociclib/ letrozole combo after a frustrating summer on chemo! I couldn’t have fulvestran as had not had any hormone treatment since diagnosis of SBC. I take twJoypills a day and have had no noticeable SE. Pablociclib is not categorised as chemo, but targeted therapy, and the trial results are game changing if it works for you. It seems to offer quality of liJoy and stop progression for a while. I am not being sponsored by Pfizer by the wayJoy

  • Thanks so much for your reply. It's abemaciclib  I've been offered, which appears to be an alternative to Pablo? I'm so glad you are getting some relief now, chemo scares the life out of me. I obvs need more info rom my McMillan nurse so will try her again, but there seems to be more+ than - reactions from the responses I've received on here Muscle back to more thinking for me Flushed stay strong Meiard MuscleKissing heart

  • Hi I'm in a similar position, I really don't know what to do, been diagnosed with secondary breast cancer which has spread to my lungs, chest bone, hip, ribs and shoulder.

    I have been told my treatment will be letrozole and ribociclib a cancer tablet.

    I am also torn between quality instead of quantity but my family want me to go for treatment.

    I just don't know what to do 

    Rosie

    R Bull

  • Hi Rosie, ribociclib is another member of the targeted therapy drugs. As I mentioned before they have made a real difference to a lot of women so far, with quality of life an important factor. DefFingers crossed tone1ely worth giving it a go; if you get side effects that make you feel bad you can stop! If not it could give you a couple of years of normality. That’s what I am hoping for, but only two weeks in sFingers crossed tone1o soon to tell if it is working Fingers crossed tone1Fingers crossed tone1Fingers crossed tone1