Breast cancer spread to liver

Hi jules I amnsorry to hear about your mum.Just wanted to share my experience with Paclitaxel.I was diagnosed with breast cancer with spread in my lungs,liver and kidney.Except the lungs I had no symptoms.That was in May 2019.I have started weekly Paclitaxel in August 2019.My last scan in April thisbyear showed that my liver and kidney are clear and lung nodules keep shrinking too.

I am tolerating it well no sickness or diarrhoea or tiredness.

I hope it will help your mum too.

Janet

My wife was diagnosed in 2009 and had mastectomy and on arimidex for 5 years. Once the 5 year mark came, her gp took her off meds and said she's fine, no scan or referral. We accepted it as we also thought the 5 yr mark was a milestone. Late 2017 diagnosed with stage 4 in liver and spine, why gp's are allowed to stop treatment without scans etc is a scandal as there are so many women on here in the same situation.

However, she went onto ibrance for 9 months, then paclitaxel. Paclitaxel was awesome, shrunk the tumours and reduced markers totally. Then she was due to go onto new treatment but covid put an end to that so tumours grown again.

She tried cold cap but couldn't do it so lost hair, but all grown back now.

She said if she has intro chemo again, she'll tolerate cold cap.

Best of luck in your fight. Xxx

Thanks for your reply Janet. This gives me hope I must say and I have everything crossed that mum will do as well as you. I will jump for joy if she does!

she did so well on palbociclib we really thought it would give us much longer. We r grateful for the year we got. I hope you continue to do so well, big virtual hug to you. 

jules

Thanks quoman

i agree it’s terrible gps can stop treatment with no scans. If mum had got scans after her 5 years we wouldn’t be here now I’m sure. 

I am amazed at your story and feel more confident now that if she can tolerate it this chemo might just be a really positive step. COVID has been the worst nightmare For all cancer patients and I wish your wife the best for her next treatment. Keep strong, keep fighting be positive. Bless you both for sharing. It does make you feel not so alone. 

big virtual hug to you both. 
jules 

Thank you Jules and i am really hoping it will help your mum too.This is my first line of chemo so I am hoping it will keep shrinking the tumors because i have almost no side effects.Its always scary if you change to another chemo.

I had some skin issues at the beginning but my Gp has prescribed a very good cream and now the problem has been sorted.So just tell your mum to watch the skin.

Take care

Janet