My wife feels very restless after chemo

FormerMember
FormerMember
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Hi, my wife was recently diagnosed with secondary breast cancer and had her first chemotherapy on Friday. She has not had any symptoms till today. She is feeling very restless and has aches in her bones. Is there anything she can do to relieve this in any way?

  • If she has been given steroids as part of her chemo protocol,  they're notorious for making people restless. 

    Has she had any growth factor to boost her immune system following chemo.  Bone pain is a common side effect if she has. 

    Contact her team.  All side effects, no matter how minor, should be reported with the first cycle.  There are no prizes for suffering in silence until the next appointment rolls around.

  • FormerMember
    FormerMember

    Hi - nice to meet you and your wife - I just wish we'd met elsewhere rather than here.

    The restlessness is definitely down to the steroids - they're absolute swines for it! They had me climbing the walls. Very hard to describe unless you've had it - "twitchy" is how I used to describe it.

    Re pain:

    As thehighlander said, it would probably be best to contact the chemo suite and see if it's something they need to worry about. They would probably also be able to advise or prescribe a decent painkiller.

    That said, I had Docetaxol (also known as taxotere) last year for secondary breast cancer with liver mets/lymph nodes. I used to get it on the Thursday and by the Saturday, I used to swear blind that someone was battering my shins and feet with a red hot lump hammer. I used to have a warm bath loaded up with Radox and it would help a bit.

    By Monday, the red hot lump hammer would have been exchanged for a gently warmed toffee hammer and each cycle of it got better, with less pain.  I tell you this just in case your wife is on Docetaxol - hopefully a bit of reassurance that bone aches and pains are normal. 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi MooCoo, thank you so much for replying to my message. What I don't understand is if my wife stopped taking the steroids on Saturday, why is she feeling the effects on Monday? Is that common?

  • FormerMember
    FormerMember in reply to Lolie

    Thank you Lolie. She has been given some daily injections to take for 7 days so that makes sense that would be causing the bone aches.  I am hoping to speak to my wife's nurse specialist today with a few questions. 

  • She can talk to her team about taking loratadine for the bone pain.  Many patients report that it helps, although studies are divided about its effectiveness.  Just make sure you get plain Claratyne and not Claratyne-D.  I take it and I find it does help.

    Keep on them about pain and other side effects.  There is no reason for your wife to suffer unnecessarily when solutions to many of the most common side effects are simple.  Especially don't wait until the next scheduled appointment to seek relief.  Side effects have a considerable negative impact on your mental state so you want them dealt with ASAP.