Saw oncologist yesterday and he wants me to have a bone biopsy on Tuesday.
Anyone out there that can tell me what to expect?
I thought and hoped you would be aneasthitised for the procedure, but I now understand that isn't going to happen
The biopsy is going to be on my humerus which is very painful already.
Would appreciate any advice and help ahead of Tuesday's procedure
Thank you
Hi,I too had a long gap between first and recent episode. I am 6 months into treatment. It really is a difficult thing to get head around. Like me, I guess you thought you were in the clear, then wham the thunder bolt arrived. It is an emotional rollercoaster, but I have found friends and family and contacts on this site, immensely helpful. I had to have a bone biopsy from the right side of my illiac, pelvic bone. Like you no anaesthetic only local, which went very deep. It wasn’t the most pleasant but not painful for me. The painful bit was when they injected the local, each one seemed to go deeper, once done it was a lot off pressure as they pushed the needley thing in to retrieve the sample. I am seeing a psychologist to help with my emotional outbursts, having appt next week.
Sending lots of positive thoughts and a tag line I have adopted from another very helpful contact on this site, ‘ stroger together’
Xx Pat
Thank you Pat. You have given me the one thing I was most desperate for and that was to hear from someone who has been where I'm going.
What was the outcome of your biopsy? Dud you go onto chemo? Tablet or injection?
Thank you xx
Hi mounties,
My oncologist was hoping for a more different result than I got. Because my previous cancer was HER2+. It was, 'indeterminate', so where does that leave me? I had a CT scan a couple of weeks ago to check for any spread, should have had results on 10th but didn't happen so I have to wait another week. In the mean time I am taking letrozole and Denosumab along with Oxycontin (morphine substitute), My Oncologist is spreading out treatments, her thinking being that If I have it all now what will be left for future treatment. Which , I think, makes sense.I never thought I would use this site, as I didn't the last time around. This time is different, we are all dealing with something very different. I have found this site very helpful and can say I have had some great advice and support. I am going to see a psychologist to help with my emotions, which seem at times to be out of control. My friends and family just keep on talking to me while I'm having a breakdown, which seems to help.
I hope your bone biopsy goes well. Is there a result the oncologist is looking for? Hang in there, it really is a journey non of us want to make, it is crap. Sounds like you have a lovely family, enjoy your time with them. As a friend said to me Live for the Day, along with Stronger Together, which I have adopted from another user of this site.
Good luck with everything
best wishes
Patx
Hi Mounties,
Have read more of your posts. Ask GP for referral to paliiative care, mine is provided through local Hospice. With this you will have a palliative care nurse who can help with queries and provide support for you, a named person for you to contact. You need someone who is there for you. I have found this to be helpful.
Good luck, keep strong. Stronger together
Pat x.
Thanks Pat for the advice.
Think I must be at the bottom of everyone's to do list as never get what I expect.
On Tuesday I was booked in for a bone biopsy of my shoulder. Told by registar its urgent to find out if HER2 negative or not.
So not looking forward to biopsy but thought finally might get some treatment.
Monday evening phone call from hospital to say biopsy cancelled as have no beds. Great.
I am in so much pain from my arms and shoulders that sometimes my husband has to cut my food up for me. Yet no one is listening and 3 months on still no treatment apart from Ad Cal tablets
Hi Mounties,
I have recently had a bone biopsy to my pelvis and experienced two cancellations due to CT scanner breakdowns before it was finally completed on 8th July.
I was dreading it after hearing from someone that no anaesthetic was given at all. Actually it was no where near as bad as I was expecting. The initial needles for local anaesthetic sting a bit but are over quite quickly. The biopsy itself was not painful, just a bit uncomfortable and there’s rather a weird tapping sensation. I just closed my eyes and went to my happy place and then it was all done!
If you are concerned then speak to the surgeon/theatre nurse as they can give you sedative and additional pain relief if you need it. I had a cannula in just in case but didn’t need anything beyond the local anaesthetic as my breast care nurse had advised me to take some pain relief before I went in (I took co-codamol).
Hope you get it done and they can give you some treatment soon. Once my biopsy was done things moved quite quickly with my treatment plan so fingers crossed it will be the same for you.
Best wishes
Sarah
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