Why i wasnt offer a fast treatment

You have a right to request a second opinion. Go and see another oncologist find one who is interested who you feel you can trust. The answers may not change but you need to be under an oncologist you feel is interested in you. Try calling your breast care nurse to discuss how you feel. Good luck.

Hello thank you for your message . I am already going to seek another opinion.I am flying to Germany on Thursday I decided to pay private even I will have to borrow from my family.I am very disappointed from the attitude here.Just don't understand why some people have different treatment.I have worked hard in a care industry and now I need help and can't get it.

I am afraid the cancer nurses are not much help either that's why I am going abroad.I want to be saved no matter of money.At least if I pay someone will show interest.

Hi Denise

i sort of know how you feel.  I was diagnosed secondary at 45 the same time as my primary. Straight away told they would not operate. not to the breasts, nodes  or the liver. I felt written off, forgotten about.  I went for a second opinion and was told the same.  I had chemo and targeted chemo which I have continued on, maintenance treatment they call it.  2 and half years later still here and the cancer is stable.

it is a lot to get your head around, you just want them to do something.  I ask and ask but because of where the cancer is dotted about in the liver they couldn’t get it all and it now cannot be seen on the scan.

if Germany say they would treat you with the immunotherapy first at least you could have it in the uk and save Germany for another time.

i wish you all the luck in the world xxx 

let Is know how Germany goes

Hi Angela and Thank you for your reply.I am very emotional and angry the same time.My oncologist was like an cold statue showing not much interest.

I am not very fond of to be injected and to sit in the chair for chemo for years.I want to go to work and want to be normal.When I had chemo first time it triggered anxiety and panic attacks I was sitting in the chair for hours and the results is..... came back again.So I want to find out if I just could take pills or something.I can't deal with the pain from the needles and I hated have a Picc line inserted.Couldnt have bath couldn't do anything with that arm.

If they tell me the same I will have to go down the natural remedies route because I can't imagine myself to get injected with chemo again I just can't.

Anyway I hope you will carry on doing well you are very brave.

Denisa

Hi Denisa

i know I hated the pic line too but don’t have one now and yes I have to go every three weeks for treatment and it is shit but it’s keeping me alive. Yep anxiety too In early days, but coping better now.

you have just found out so very early days,  immunotherapy probably won’t have the nasty side effects as chemo.  Keep that in mind.

sending you a massive hug xxxx

Just thinking. The biopsy will be to check if the cancer type has changed.  It sometimes does differ from the primary, which could open up more treatment options.  My friend went to Germany and they retested her tumour and it had changed and is now on treatment in the uk with Herceptin and is saving Germany.

dont give up hope xxx

Hi Angela thank you for your supportive and kind words.This biopsy should be for lungs this annoying oncologist wanted to do for breast one too but I refused.I got so upset I just can't see a point once if it's in my lungs it's stage IV so why she wants me to torture me more with the needles.When I had biopsy I was crying because of the pain.Plus waiting time.She should book me for biopsy next week not in few weeks time.I just see everything black.I don't really want to fight.

I am going ahead with Germany want to know what they going to say.The way she was talking to me like a robot.

Deniss

Oh blimey this is a shocking disease 

my husband has had CEX and herceptin but the rumour has spread but my concern is the Oncologist didn’t spot his stent had dislodged into his stomach from the CT scan. We pushed for another meeting with the  gastroenterologist who today told my husband from the sane CT scan that the stent was in his stomach and they placed another one in. 

Im losing faith in his oncologist if she didn’t spot that in the stomach what else isn’t she spotting or is the spread to the stomach the actual stent being seen on the scan !! 

How did you find out about Germany ? 

Hi Shanney what terrible experience is.I have asked the copies of the medical reports and all stating different stories from the ones they have been sent to my GP.

I wonder if these oncologist can actually read properly the scan pictures.I have an old friend living in Germany she found for me a clinic so I want to go there get an advice.Because I am not happy with the attitude of my oncologist.Last year I went to A&E with bad flu and they found out I have a fatty liver.I dont understand why she can also do some ultrasound and double check.

While i was crying and trying ask questions she was playing on the phone.So I am not amused.

Sometimes its better  to ask another person and get second opinion.

Denisa

I agree it’s just knowing how to go about it 

hope it all works out for you