Hi,
After a successful eighteen months on Anastrozole after my Secondary diagnosis, things started to progress again. I was then given Exemestane. I had a CT scan done about six weeks after and although there was some improvement, it was decided that I would need to take Everolimus alongside the Exemestane. I struggled a lot with the thought of being on any kind of Chemo again, but realised that was now going to be the way forward for me. When I first started the combo, I had a couple of mild side effects like a slightly sore mouth, very mild stomach upset, which I now wonder was more to do with the anxiety I was feeling about taking it! I have been on them for a month now and the sore mouth has settled down. The side effects I seem to have now are a dry mouth and the fact that all savoury food tastes the same. Sweet things are ok! My biggest worry was how it would affect my immune system.I had my first blood test done after four weeks and my white cell count was 3.8. My oncologist said this was at the low end of normal. Which was between 3 & 8. I always thought it was between 4 &11! I keep thinking this may be the lull before the storm! I expected much worse side effects. I know I should just be grateful that so far I am coping well, but it is a constant source of anxiety! I have three gorgeous Grandchildren who I want to spend more time with, but everytime they get a cold, I feel like I have to stay away. On a positive note, it seems to be doing its job and I have been able to carry on working a couple of days a week. Just wondering what other people’s experience of this Combo has been and how it affected them?
