Weight gain on Capecitabine

Hi  and a warm welcome to the online community

Although I can't answer your question I noticed that your post had gone unanswered so decided to see if I could help. I put capecitabine into the search bar in this group and saw that  has posted about it fairly recently. She suggested sports tape for the soles of your feet along with cream. I'm hoping that by tagging her into this reply she'll see this post and respond to you.

Best wishes x

PS I like your username - very positive!

Hello

I've been taking capecitibane since last summer for the same as you, secondary breast cancer in my lungs, just finished my tenth cycle. The chemo nurses who give me the pills have also given me lots of double base cream to use on my feet and hands. It's really helped, especially for my feet, takes a while to absorb in but worth the wait.I love knitting but it's doing my finger tips in ! I've bought some cotton gloves to try, but don't feel much like knitting when the weather is hot.

I've not gained any weight but do suffer from wind !

Sending you my love

Sue

Hello there.  I had terrible sore pealing feet on capecitabine.  Flat shoes are a must and cushion insoles but the real releif for me was the sports tape over the balls and heals of my feet.  Still had to try and stay off my feet as much as possible on the worst day.  I didn’t notice weight gain but I have developed a why deny myself attitude to cake etc so I know I have put on a bit but can’t blame chemo for that.  Did find capecitabine made me sleepy so wasn’t as active as before and combined with having to stay off my feet that won’t have helped.  When your feet are a bit better can only suggest keep as active as you can.  Best of luck. 

Hi  

I am on cycle 5 of Capecitabine, secondary diagnosis Jan 2018,  and can’t believe how tired I am all the time: going to the shops is like The London Marathon it feels like!!

I have put on weight since starting this chemo drug in Feb, don’t know how much but it’s there. 

I would love to do more activity ( last Oct walked 11miles). I was always an active person previously, so find this depressing. 

However I find sleeping at night difficult ( diagnosed sleep apnea). On Melatonin ( prescription), as GP won’t prescribe sleeping tablets. 

Cetraben cream and Aveeno cream on prescription help dry hands and feet. I also have sore eyes ( gel on precription) and nose ( ditto spray). I also had a free sample from Chemo Dept for Udderly Smooth Cream with urea and this absorbs well into skin. I have requested it on prescription. 

Are there any Maggie’s Centres, The Haven, or Macmillan Centres ( or hospital)  where you live? Could you  get some complementary therapies eg Acupuncture, Reflecolony, Massage ? Do you have a Breast Care Nurse who can provide information regarding these etc? 

Wish you well. 

Judith xx

Thankyou for your advice, you sound like your suffering same as me. Like you say it’s probably sitting and not being as active for the weight gain. I’ll just plod on 

Hi Judith thankyou I will ask my breast nurse about the other creams I was given dibrobase and been using the white cotton gloves and socks, because it’s so greasy so put it on last thing at night. Maybe I ought to use it more often.  Best wishes to you also xx

Hello there, thankyou for your help, I used the username because I did weight watchers on line before all this started and it does make me feel a bit positive hey ho as the saying goes.

 You also take care xx

I've just finished my 2nd cycle. I was on 4300 daily. Im a slim size 12. Think this dose was way too high and i really suffered. Coukd hardly walk and hands were so painfully. Couldn't cook or do much. Thought i would lose weight as my tummy was constantly upset but alas i didnt really. Wind also is a problem. Onc took me off for an extra week and we are going to reduce the dose. Good to read here i can get creams on prescription. I'll look into that as ive spent a lot of various different ones. I heard the utterly one is supposed to be good. I am normally very active so this has been a shock. Ive been on easier iv chemos then this. I really hope it eases up. I was orginally told this was an easy chemo but im not feeling it so far!!!

What doses are you guys on? How did think look after 3 months? Im getting scanned after next cycle. I have generally stable bone mets but new small diffuse liver mets after progressing on last treatment.

Gosh that’s a high dose, mine is 1800 twice a day, you sound opposite to me you can’t eat and it’s like having cravings when your pregnant for me which along with not much activity doesn’t help the weight. 

My feet are so sore and nearly lost my left big toe nail altogether ( not good with sandal weather upon us)my onc has reduced the dose for a cycle to help them.

Take care xx

I've just finished my tenth cycle and take 2500 twice a day.

Getting next batch on Monday, not been feeling 100% for the last few days. Previous blood test showed slight drop in white blood cells, had latest test on Thursday so it'll be interesting to see if they've changed.

Due to have another pleural effusion the following Monday, needs doing every six weeks and they usually take one litre. Is anyone else having that done ?

Sue