Paclitaxel

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Hi, my wife was first DX 10 years ago with primary BC, 2 lymph nodes affected. A lumpectomy, full lymph node removal, followed by chemotherapy and radiotherapy.

3 years ago, she noticed swelling on her neck, her doctor didn't take it serious until the pharmacist at the chemist said she should definitely get it checked out.

A DX of SBC in the lymph nodes a d vertebrae.

Now has progressed to her bladder and is being put on paclitaxel.

Who else has been on paclitaxel and how did you do?

Bazza

  • Hi Bazza

    I've been on paclitaxel for 7 months now. Weekly for 12 weeks then fortnightly. I've found it very tolerable with some side effects. I lost my hair during weekly chemo but now growing again. I developed pheripheral neuropathy in toes around twelve weeks but manageable. Sometimes digestive issues but not bad but never knowing whether chemo or cancer or something else. I've read your other thread. I hope your wife isn't unwell with paclitaxel and the tumours responds to it.

    Best wishes

    Stripey x

     

  • Thank you stripey at. How come you are now on it monthly?

  • I get paclitaxel fortnightly.  The consultant had initially said 12 weeks then get a CT scan. Scan then showed either areas were stable and some areas shrinking. She decided that it would be sufficient for fortnightly to keep cancer stable and easier to tolerate if on it long term to be given fortnightly rather than weekly

    Stripey x

  • Ah OK, How long will you be on it for?

  • I think the intention is to keep me on it as long as tumours are stable and also if I'm still tolerating it. If the tumours become unstable I've to get chemo tablet along with targeted therapy. My next scan is mid October.

    Stripey x

  • Nikki will also be having a catheter connected to her kidney on Friday. That's just as upsetting for Nikki.

  • Aww I’m so sorry she’s having to go through all this. Cry lots of hugs to you both xxHeart️

  • Chemo didn't happen today because they couldn't put the canula in. Nikki needs a picc line. 

  • Oh no ! Tbh she’s probably best with that so there’s no stress. When my time comes for chemo, I will be asking for one as my veins are shot from chemo and many hospital visits over the years. My friend said it’s not painful, just a bit sore after it’s fitted. How’s Nikki getting on with the catheter? Xx

  • Nikki had to have a picc line first time around too.We bought a belt with a bag to go outside with. So it's not quite so obvious. 

    Last night Nikki's started being sick again Cry