Hello All,
I’m at my wits end and just wondering how people have felt on Capecitabine?
I’m constantly tired, slightly breathless and a fullness in my chest. Stabbing pains in the side on the left side on the chest, but I’ve been putting this down to stress/operations on the left breast and lymph notes. I take 4000mg per day for 1 weeks and 1 week off.
Kx
I’m on capecitabine.
I feel tired. Okay with breathlessness and don’t experience that much.
it has affected my feet drastically though so got hand and foot syndrome.
I was also on 4000 a day but has just been reduced to 3000 to ease the pain of my feet. It was shredding my skin to bleeding stage.
I take 2 weeks on and have a week off.
xx
Sorry I meant to say 2 weeks on 1 off. Do you mind me asking how long you were on Cape for the hand and foot showed? I do have burning on my feet and hands but trying to moisturise like crazy. This is my 3rd cycle and symptoms seem to be worsening. Look after yourself, I hope your hand and foot improves xx
Hello,
I don’t mind you asking anything. I got to cycle 6 and that’s when it started to be really bad - I was really struggling to walk and that’s when I saw a nurse and she said she had seen worse. I was like wth ha cos I thought mine was bad when it was at bleeding stage.
I mean tablets aren’t half as bad as IV chemo so trying not to complain too much!
mine isn’t for secondary at the mo. Mine is being used as preventative so having it after IV, surgery and radio.
she said to me it won’t get better until the treatment ends. I have two cycles left. I’m on my 7th now but the lowered the dose however my feet have started already after 3 days of cycle 7 so not holding much hope ha!
Keep moisturising! Xx
I’ve had pac and carbo. Then I had Red Devil. Had to do what I had to do for my daughter. She’s 13.
IV was really rough for me. My hair is just about managing to come back slowly!!
Now I think these are a breeze compared to IV.
just try and keep up with the moisturising.
I say these are better but I’ve been up all night with itchy feet!!! I’m knackered xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007