Breast cancer spread to my lungs

Just sending you support. I too discovered (via a general lung health check that I had in Tesco car park) that I have secondary breast cancer in my lungs. That was last October. Have you seen the scan and had it explained to you re where the nodules are, the size, how many of them, etc. do you know the size of the nodules they are taking a biopsy from?

I had a biopsy a couple of months ago. My largest nodule was 8mm. They took the biopsy from that. The procedure itself was totally painless…but I could feel the radiographer ‘poking around’. But no pain at all. I’m sure you have been given some info regarding the process, etc. for me it went well, but on the X-ray I was given before I left, they found that some fluid had formed at the bottom of the lung, so had a drain put in. Back to the hospital 2/3 days later to have it (painlessly) taken out.

sometimes a little knowledge of what lays ahead can help to reduce the anxiety. “Can’t be cured” does not mean it is terminal. There are many treatment options available, that can go on for months, even years, aimed at ‘holding it at bay’. the treatments vary depending which kind of breast cancer you have. 
Lulu. X

I forgot to say that, during this second ‘journey’, I have now spoken to a number of women who have what we have…initially diagnosed anything up to 8 years ago, or more…and they are still going strong..with the right meds.

Lulu. X

Thank you for your reply , it means so much to me , I had a chest xray then a ct scan that showed multiple nodules on both lungs and a small build up of fluid , having a biopsy taken from my lung on Tuesday x

What treatment you having x

My ct scan showed about 4 nodules between 5mm and 8mm. With innumerable other nodules. In both lungs. My breast cancer is HER2 negative, ER8 and PR8. Seems this cancer does not respond to immunotherapy, so the options available to me re treatment are hormone therapy (Letrozole) and Ribocyclib. Or chemo, but I’m not going there! I have considered them both, but I have other health issues which could get worse re side effects if I took either. I am 71, by the way. In the end I tried Letrozole and had very bad side effects. So I stopped taking it after a few days. The initial ct scan showed the cancer has not spread to my lymph nodes or my bones.  Lucky, heh?  Lol. I had a ct scan yesterday and have my appointment with the consultants team to discuss the scan (ie..it will show how much the cancer has grown since beginning of November last year) on 6th March. At that point I am extremely likely to refuse further treatment, but before I make that decision I would like to know how much the cancer nodules have grown since beginning of November. 

Just wanted to say I'm sorry which sounds ds totally inadequate. Stay strong and keep hope. I don't have your expectations i had initial diagnosis in 2021 them bone mets in 2023 and further spread last year. It can be treated so don't give up. 

Feel however you feel it's completely natural, share those fears however you need to.

Take care xxx

Hi there, I have mTNBC with extensive mets mainly to my lungs.    I’ve been told incurable but treatable.  Stage 4.   Diagnosed last April.  On my 9th month of chemo.   It’s not easy but doable.   I’m 66 and giving treatment my best shot.   I’m on Taxol chemo 3 weeks out of 4.   CT next week to see how things are doing.   The diagnosis was hard, I’d only just been given the all clear from breast cancer when I found a lump on my collar bone.  My cancer had mutated to triple negative and returned with a vengeance.    I felt much better once I had a treatment plan, it’s the unknown that’s scary.   I’ve have lots of wobbles along the way but somehow manage to keep on keeping on.   No alternative really.   I wish you all the very best for your difficult times ahead.   This is a great supportive group, do keep in touch.  Lots of support and advice on here.   

The treatment is brutal , I had chemo both times I had breast cancer , the thoughts of going through it again terrifies me , hope your scan results are OK,  keep in touch x

Thank you for your reply , how have you done chemo for 9 months , I had chemo both times I had breast cancer and it was brutal . The thoughts of doing it again terrifies me , when do you finish chemo ?  hope your scan results come back OK  , take care and keep in touch x

Hi there, god knows!    Did 6 months Gemcarbo until I got progresion and currently on Taxol for 3 months.   Trodelvy next if that doesn’t work.    I just keep going week by week, telling myself if it it gets too much I’ll stop.   Guess I’m tougher than I thought.   Once quality of life goes, I’m done.