Hi Everyone,
I was diagnosed last May de novo with breast cancer spread already to the lungs and lymph nodes. I’ve been on ribociclib and letrozole since June and have had some shrinkage. Unfortunately I found out this month I also have bone and brain mets which I suspect have been there for a while but weren’t picked up on my ct scans. I only found out about my brain mets following seizures earlier this month which was incredibly scary, more for my husband than me as I’ve no memory of them beyond waking up in hospital. The only positive in any of this is my oncologist thinks my bone mets in my ribs have pretty much self healed, probably due to the ribociclib. I’ve been told I’ll need radiotherapy for my entire brain and am now waiting to hear when that can start. To say the new year hasn’t got off to the best start is a bit of an understatement! I’m particularly worried about having brain Mets and wondered if anyone else has been through treatment for this and if so are any words of advice you can offer? It would be great if anyone has had a successful experience with radiotherapy or good results? I’m finding coming to terms with cancer in the brain mentally very difficult, especially as ive already spent the last few months coming to terms with it being in my lungs. This is a horrible disease to deal with and any words of hope would be greatly appreciated. Thanks xx
I know , me too . I can’t imagine life before this now and yes the anxiety can be awful ! But we’re have to keep going and hope for more new treatments.. 
️ I’m sure once you know that something is being done , you will feel a bit better. I’m hoping to get a call tomorrow and a head scan or I’m paying for it. Good luck with your treatment and take care. Xx
