Fulvestrant and nerve pain

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Hi All

I am experiencing nerve pain and numbness in my left hip/buttock. Spoke to my oncologist today and he said next  time I have to have both injections in the other hip.

Anybody else experienced the same? Did it get better?

Thanks in advance

Cathy

  • Hi  

    I'm sorry to read about the nerve pain your experiencing, which must be very unpleasant.

    I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    I hope it gets better soon

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi

    Sorry to hear this and how long does it last?

    Do you know I have had some numbness but put it down to bad hip that side and hadn't said anything. I just didn't put the injection and numbness together because it didn't happen straight away. Been on treatment for over 3 years. What I have had is really bad reaction on the injection site itching etc which happend for a few months and stopped. Another friend had the same reaction and then it stopped.  We put it down to a change of suppliers of drug and the ingredients?  Whether that is correct or not I have no idea.

    I wonder if they are injected in the correct location/ area? It seems to have changed for me with different nurses?

    I hope your situation improves and keep me updated.

  • I am having the same numbness and nerve pain in my left hip, thought it was just me and thinking l have another problem to worry about. l will speak to my nurse about it. I have been having injections since May and that's when it happened and hasn't stopped l use my Revitive machine daily which seems to help a little bit. 

  • Thanks for the replies. It has eased up a lot now but I can still feel it in my left hip.  I am due my next lot of injections on Thursday. Bit scared to have both injections in one hip though!

    I did do some research online and it is a known thing that the injections can cause nerve pain etc. Just hoping it will be ok this time….

  • I asked about having injections both injections in the right side last week but was told definately not. Suffered with nausea and generally felt unwell after.