TPH - Docetaxel, Pertuzumab and trastuzumab Chemotherapy

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Hi there, I am new to this online forum, so please forgive me if I have posted in the wrong area.
My sister had a mastectomy in 2020 and has been fine every year since.  Last November her annual mammogram was clear but she had a slight cough, she had an xray, then a CT scan and bloods,  Turns out she has secondary breast cancer, the cancer has spread to both lungs and she has nodules in her clavicle. That was a very long 19 weeks ago and she has just had her first chemotherapy treatment and her second scan ( waiting a long time) and unfortunately it has also started to spread to her liver now. After her chemotherapy she is so drained. Already had to go back to the hospital with a temperature and has been given antibiotics as her blood count was raised. I feel so helpless not knowing what I can do to help. Is anyone else on this treatment and how are you coping? Any advice welcome please. 
Thank you x

  • Hi  

    I haven't had this treatment but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi 

    I had the same treatment 2 years ago, mine is bone mets not in any organs as of yet, the chemo is quite a tough one but I did tolerate it ok, it made me very tired so I just did as my body told me sleep and rest at anytime and it’s ok to do that, I just had mouth ulcers at the start of the 2nd chemo but was soon treated with a mouth wash, it really does drain you but honestly once it’s finished she will start to feel better within weeks it worked for me so fingers crossed it does for her too, any questions please don’t hesitate to message x

  • Thank you so much for replying, I haven't quite figured out how to find my posts yet. Still trying to find my way around the site. I am not technically 'up with it'! I am so glad the treatment has worked for you, such a horrible disease. My sister is as you say listening to her body and resting when she needs to. Makes her feel quite drained some days. Hope all stays well for you  xx

  • Oh wow that’s a long time from diagnosis to treatment.   I’ve just been diagnosed with a very similar scenario..  Mets to one lung and various nodes, all right side where breast cancer originally was.    Hopefully chemo will do its job and things will settle down soon for your sister.  How lovely she has you to support her.  I cannot lie, I’m petrified.   The irony of feeling perfectly well and then willingly accepting chemo which will make me feel ill is hard to get my head around.  

  • I know, it has been such a stressful five months. She has been so strong. It doesn't make sense does it? Putting a load of bad stuff in your body to feel well again. But touch wood, she has just had her second cycle and is doing well. She is trying out the cold cap and so far so good. But she knows there is no guarantee it will save her hair. I hope your treatment goes well for you, the mindset of the upcoming treatment must be difficult to get to grips with. But I wish you well xxxx