Hello, Sorry if you’re reading this….you’ve been on a journey you didn’t want to go on and it takes us all so so differently. My journey has taken me to a high risk group after group 3 breast cancer. I had brilliant treatment from Maidstone and Tunbridge Wells Trust. I am soo grateful to them for their skill, humour and help. Without them all I wouldn’t be here writing this today. Clear margins, no evidence of spread, but 87.5% chance of return and spread on genetic profiling so moved on to chemo and radiotherapy.
Now I am at the daily Letrozole stage with six monthly zolodronic acid treatments. Although 68 with healed trauma injuries to my left femur I do all I can to keep the return at bay and keep my bones strong. 30 mins aerobic every morning with walking, swimming etc good diet with berries, leafy greens, pulses, beans no alcohol well hydrated. So I felt really well then, about 6 weeks before Christmas I took a total nose dive. Massive pain in shoulders, arms, hands, hips, thighs. Tried to stay calm and see if it went away and was at the point of contacting my consultant saying something seems to be wrong here when the pain started to just go away. I had changed no part of my routine except the exercise was more patchy.
I suddenly realised the brand of Letrozole I was given changed from time to time. Some experimentation seems to show that if I take one brand I become almost crippled but on another I am totally normal. I have now come across another two women who have had similar experiences.
Has anyone else had this experience? Is it a thing? I am curious as chemically it shouldn’t make a difference but I am not following up on the terrible pain I have had because it seems a no-brainer that ther is a connection? L xx
