Bone mets intermittent pain

Wonderful! You must be so relieved. Hopefully the drugs will work for years. This is your golden time. No one knows what an around the corner. Please don’t waste it worrying. That’s what I tell myself —- and want my friends to tell me. 

Thanks so much for replying. And good to hear the cancer is regressing. I wasn't sure if the drugs could shrink it, or just stop it growing. So that has made me feel a bit better. Glad to hear you are feeling yourself again. I only got my diagnosis in November so still trying to get my head round it. Good days and bad days, like you all I imagine. X

Hi, I've read somewhere on here that the healing of the bones can cause pain. I've not had any pain personally so I can't be certain. But I'm absolutely sure that if we all prop each other up we can get through this shit show !! 

Thankyou for replying...talking to the nurse this week this is definitely a great 1st line treatment that is going to be used a lot more because there's some really positive outcomes for a lot of us ladies. 

Good luck 

What a lovely , uplifting message to read this morning.

Thanks Batman1.!  Hope everyone has a good day. X

Hi all, I was so relieved to read your posts. I had a breast lumpectomy in June23 and delayed radiotherapy (Oct23). I’ve been on letrozole since June. My problems and symptoms seemed to start in December23 /January24. I developed lymphoedema and fibrosis in the breast and terrible pain in the hips and thighs. I thought a lot of the pain was down to letrozole but a bone scan also identified osteoporosis ( will be starting aladronic acid after dental work). Because of the severity of the pain I was sent for a tracer scan and had a telephone call yesterday from my oncologist to say they had requested an urgent mri scan to check on the lower spine. She said not to worry but I havn’t slept all night. I had small cell lung cancer Jan19, (lumpectomy) and have had no recurrence. My breast cancer was er positive and I was told not related to the lung cancer. Today I feel like giving up the fight so it’s so good to read your positive comments. Thanks for sharing. 

Please don't give up the fight. I'm sure we all have days like that. Can I ask,  was it stage 1 breast cancer you were diagnosed with?

Hi Karen

i got my scan results today - my first since diagnosis.  Very good news that the treatment is working well and the tumour in my spine has shrunk.  So relieved!  And my neutrophils are 1.16 so I’m ok to continue treatment tomorrow - cycle 5.  Next scan in four months.

How are you and everyone else?

K x

Hi KazEd. Amazing news! The relief you feel after getting that kind of news is like nothing else. Enjoy it. 
I’m due my second scan in a month. I’m on cycle 7 or 8 now and still feeling really well so I hope it means the drugs are still working. 
karen. 

What great news! I am half way through cycle 3, so I believe first scan due mid March.  Can I ask how long you had to wait for the results? X

Radiology said it could be 4 weeks but my Oncologist hoped it would be back for my next review 15 days after.  Thankfully it was.  He has scheduled the next one for four months time.

K x