Secondary breast cancer

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Started Ribociclib today.

Hoping I can tolerate it.

I finished treatments for breast cancer last August.

I now have cancer in various bone sites.

I would like to know how people cope with a diagnosis like this.

I know we all cope differently. 

At the moment I don't believe it's happening to me.

I can talk openly about it but it's as though it's about someone else.

Only been 2 months since diagnosis.

I don't know if this is a bad thing not accepting things.

I have other health issues, Lupus being main one.

I had Lobular breast cancer.

Doreen x

  • Hi

    Just wanted to say hope your ok and that however you deal with it is fine, dont think you should feel a different way. I guess its just your way of managing it all. My situation is similar, bc two years ago and now two areas of concern. Im just trying to carry on as normal and deal with each day as it comes. Im going for results of mri and ct next week and will know more then. Im trying to think about here and now rather than long term.

    What ever works best for you is the right aproach. Xx

  • Thank you for asking how I am doing.

    I decided to not beat myself up about how I deal with things.

    I'm dealing with it my way.

    I've been on the drugs 3 months now.

    Side effects which are hard to cope with.

    But scan result today to say cancer areas the same.

    So that is the best I could hope for.

    It's a stressful time waiting for results.

    I too just try and live for the now.

    I do have many moments of tears but then fight on again.

    Take care and let me know how results go if you wish to do so.

    Doreen.

  • HI Luppie. I was diagnosed with mets in June, 13 years after original cancer and 3 years off tamoxifen. To say shocked is mild! Put on Letrozole and ribociclib. Completed round 1 of ribociclib, to be told my white blood count is too low to start round 2. Very disappointed. More bloods next week so hopefully can start back then.                                       I'm just so tired all the time, not sleeping well, (partly due to pain from arthritis/bursitis in my other hip and knee). However I do have times of fun with family and friends and this keeps me going! I hope you keep strong, but be kind to yourself. I've become quite selfish!! Joy

  • Thank you for reply.

    I only finished my treatment in August then in March got diagnosed with bone cancers.

    A total shock obviously and very quick after my treatment had finished.

    I'm on Ribociclib but having side effects.

    Tablets cut from 3 to 2.

    Not much quality of life at moment.

    I have Lupus and other health issues.

    I am so sorry you are in this situation especially after all those years .

    I hope your bloods come back up and you can restart tabs.

    I recently had 3 month scan and cancers have not grown so good news.

    Doreen x

  • Hi Doreen,

    I also had lobular breast cancer and now have secondaries. I agree it is so hard to get your head around so I try not to think about it too much. I just try to remember that more and more people are living with cancer now than ever before and as long as I'm getting some kind of treatment I just try to believe that it's working. Good luck with it all x

  • I try and think like that too.

    Although I do have tearful moments at times.

    I hope your treatment is proving helpful.

    Doreen x