MBC in lungs and lymph nodes... Drs not offering chemo?My mum's just been diagnosed with MBC from breast cancer 6 years ago. She was thought to be cancer free after a lumpectomy and chemo treatment. She's been coughing since October and lost half her voice box. She finally got her diagnosis (after countless trips to the Dr). They're being very vague about life expectancy and not offering chemo treatment. I'm not sure if this is because drs think she doesn't have much life expectancy and are choosing treatment based on quality of life or because she had chemo 6 years ago. Any ideas?
I'm finding it really frustrating having no idea "how bad" her mets is. She's not one to ask the difficult questions and therefore the drs don't give all the info. I'm 7 months pregnant and so naturally I feel particularly desperate to know the prognosis. I know nobody can really answer that but I'd love some input. They're sending her for another scan to confirm if it has spread anywhere else in the body so I suppose the drs don't really know yet either. All they've said is "years not weeks/months". She has a cracked rib, she thinks from the coughing, I suspect spread to the bones too.
She's 63. This is her 3rd diagnosis (BC at 42, 57 and now mets at 63). We're in the UK.
Sending love to all those living with MBC, as patients or loved ones ️
Hi so sorry to hear about your mum, as I have recently started treatment I hope it will be of some help to share my experience. I am 64 BC at 51, 59 and now mets at 64. My treatment was not discussed for weeks whilst investigations were carried out. First a bone scan, then CT then bone biopsy. The process seems so slow but each step leads towards a treatment plan that is very targeted to an individual’s particular disease. I am on my second cycle of treatment which is a combination of injections and tablets not chemo at the moment and I am feeling well. The waiting is so hard on the whole family but I do hope that you all feel a lot better once the investigations are complete and treatment plan in place. I take hope from the fact that a lot of women on the forum are living with SBC. Sending very best wishes to you and your mum, take care, Lyn.
So sorry to read this Elly. My mum has SBC/liver mets. It’s the hardest thing. About the prognosis - I haven’t wanted to ask. I just feel it’s a snap shot and based on stats, years ago. Since April (when my mum was diagnosed) such a lot has changed/developed that I just don’t feel a prognosis would be helpful or reliable. Your right as well, until the scans they can’t really tell you or your mum everything. Until we got the results, we didn’t get any indication on treatment.in the end I phoned them and asked them when they gave us the results, we had a plan. I needed some hope and some direction - have to say I think they would have done that anyway. My mum doesn’t ask questions either and I think it’s because she prefers to leave it to them and let them worry about it - I’ve found that tough but I’ve let mum take the lead.
Weve had the same years and not months and that’s helped me, and who knows what will happen in terms of advancements between now and then. So sorry you are going through this especially with you being pregnant too :( xx
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