Treatments

Hi there

I'm sorry to hear your daughter has been diagnosed with SBC. I am 37 and have two girls who are 8 and 5. I am on ribociclib, letrozole and zoladex and Denosaumaub. 

I mainly find I'm quite tired at night but I feel pretty good throughout the day.  I think it depends from person to person.  Working and looking after a 3 year old is hard work so she is doing really well to be doing it. 

Does your daughter keep well hydrated? I religiously drink lots of water throughout the day and I'm sure this helps.

What type of bc does she have and what treatment is she on?

X

Thank you so much for your reply, I do feel my daughter is tired mainly due to her busy work life and 3 year old, I had read that some of the medications can make you lethargic but feel that is not the whole reason. Her cancer was hormone dependant and she is on the same treatment as you except palbocliclib. She had breast cancer 7 years ago and really thought that was it, as I did ,its so unfair she does and has done everything right. She is 43 this year. She started with a pain in her hip and was referred to physio thinking it was childbirth related tendonitis but she got worse and worse over a period of 7 months. I read another comment from someone else on this site saying there is not enough information given to people after breast cancer and the signs to look for, both my daughter and myself believe this and she also was very angry.

I support her as much as possible but the worse time is waiting for scan results, worse for her as she waits 3 weeks and I am sure she is very anxious during that time, its difficult to know how to cope with this?

I have been helped by some of the positive comments on this forum knowing there are others going through the same, more than we think. I hope you continue stable and positive

Hi

I too have breast cancer mets in my bones which is hormone positive.  It sounds like I'll be on the same meds or similar as your daughter. I've had the denosumab jab for the bones, have just started the zoledex to shut down my ovaries and will be starting palbociclib and letrozole at the end of the month.

Although I can't yet comment on the tiredness as I'm not on the full plan at the moment I know exactly what you mean regarding there not being enough information available for what this can do further down the line and what to look out for. I had no idea and was only told to keep an eye on my other breast and scar line.

My symptoms also started in my hip and I feel 4 months were wasted being told by my GP I had bursitis. This too left me.angry as I may have been more suspicious of the pain I was getting in my hip and the fact I appeared to have cracked a rib just by sitting up. Even then the alarm bells didn't ring for me or the GP!!! You would think having had cancer once they'd be more on it as I had no idea it could come back like this.

I have spoken with my oncologist about this delay and she assured me that it wouldn't have made any difference as these cancers are slow growing and would have been there a long time. This in itself is scary as you wonder how much longer it would take to spread elsewhere as well. 

Your daughter is doing well working and looking after a little one as well. 

If it helps your daughter I was told by a nurse to think of the scan and results as your friend, as without them they wouldn't know the meds weren't working to be able to adjust them. Knowledge is power! I just hope I can put this to use when it's my turn!

Thank you so much for the reply I hope you continue in the best way possible. So much of what you have said is the same as my daughter experienced, I wonder how many others are or will be in this position? I wish you all the very best