Yes, I noticed that the palbociclib was now in a blister pack and is a pale pink tablet. I've only been taking it since Jan 2021, so don't know much yet.
I've not had any nausea from it. I get a bit of wheeziness and a cough but that could be the secondary cancer on the lungs. I just wonder whether it's connected with palbociclib because I breathe easier on the 'rest' week.
Yes, I got my new lot of palbociclib on Wednesday & noticed different packaging & tablet. I've only had 2 so far but not noticed any different side effects.
I too got the new blister pack, but hadn't thought about it. Now that I read your post, I know that I have been feeling more tired, but that could be linked to so many other things. Wonder why they changed the pills?
I have recently been diagnosed with extensive metastatic bone cancer which had spread from my breast.I had 6 lyth nodes removed during breast operation and unfortunately CT Scan showed cancer had spread to my bones.At present scan shows it hasnt spread to any other organs,but is on spine,ribcage,pelvic bones and manubrium sterni.
I am so scared and confused at what to do,apart from the odd aches and pains i feel quite healthy and the diagnosis has terrified me.
I am being offered chemotherapy and endocrine treatment.( Palboclclib and Letrozole.)Then Denosumab injections?.
It would be so helpful if any of you guys could tell me what side effects i may experience as i am so scared.
Hi Michelle, I am in the same boat: a new diagnostic of secondary breast cancer (in my lungs and lymph nodes) and feeling terrified. I am on the same chemo (palbocuclib, letrozole and denosumab). It is actually a very good one, and we are lucky to have it as the side effects are supposed to be mild and until a few years ago it was not offered on the NHS. I am just finishing my 2d cycle and aside from feeling tired and having a very dry, itchy skin, I am relatively fine.
It is such a strange, scary journey we are all in. I am glad we have each others.
Thank you so much for the reply,I'm glad you have a good family and friends,I also have a good family and friends.Think were both going to need them as this is so scary,I don't know about you Veronique but I'm in a daze all the time and can think of nothing else.I agree with you that the night time is very hard,but I also struggle in the morning as I'm awake at 5am and can't get back to sleep.
I haven't started my treatment yet as I have to have my coil removed on Wednesday and then a dental examination on 8th March.
I have also had to give up work and its so hard as I'm a people person,I've had a cleaning business for the last 25yrs and I miss my elderly clients as some of them have been with me a long time.My husband hasn't been to work for the last 6 weeks and is devastated and emotionally drained.Sorry if I'm rattling on Veronique.
I totally understand and share what you are feeling. Our diagnosis is life changing , of course. I too had to stop a job I love and which is so much part of who I am (a journalist) , at least for now. Hopefully we'll be able to do some some lighter, more flexible work when/if our treatment is running smoothly and we get used to it. So far mine has been a bit bumpy (but not because of the chemo).
Like you, I find it very hard to cope - and it is devastating for my family too. I am not sure how not to think about it, but it seems like others in this group have managed, so hopefully we'll get there too.
Hi there, I have had a very similar diagnosis to you back in February 2020 and I too was terrified and in shock. In addition to my spine and hips, I also have tumours on my sacrum and skull both of which I had successful radiotherapy on.
I have been on letrozole and Palbociclib now for 12 months, and the only real side affects I have had are,: I get a little tired occasionally and my neutrophils are lower which is normal. This treatment has worked wonders on my tumours and I am still currently stable, ( so I am very thankful) . I have also lost alot of hair, it is very thin and whispy which is annoying but a small price to pay.
Hang in there, as these treatments are amazing and I hope it works well for you and your side affects are not too bad. Take care. Xx
