Capecitabine

Sorry to hear that. My wife has been on cape for about 6 months without any side effects at all apart from fatigue at the end of the cycle. Udderly cream for hands and feet works a treat. This is her 3rd line of treatment. Good luck. X

HI Pollywollyb,

I am due to start cape next week if blood test for dpd enzyme comes back ok. I had 2 years on paclitaxol from 2017 when i was diagnosed with advanced bc. When that stopped working I  had 11 months on targeted therapy - ribociclib, but it is no longer working so cape it is. It is good to hear from that his wife had no side effects so far. I think every new treatment is a bit scarey - but I am of the mind that I wont worry too much and try to assume there wont be any major ones. There is a concept which is the opposite of placebo, called nocebo - which states side effects are much more likely if you think you will suffer them . That is not to say side effects are not real, but that the mind is capable of amazing things for good and ill. Fingers crossed for both of us that we have a relatively easy ride. And as Quoman suggests, I have already stocked up on udderly cream just in case there are any hand and foot effects ( and it is just a good moisturiser anyway.) Will report on how I go on once I have started as it will be before you do.Having the metastatic diagnosis is heart stopping at first, but I am 3 years in and still feel pretty well so please dont despair.

Thankyou for your reply, it's so helpful hearing how others have coped.  I've got some utterly cream ready as someone mentioned it on here  all the best to you and your wife.. Polly x

Hello hello, thank you so much, I'm struggling to come to terms with the diagnosis, I can't think of anything else, it's great hearing how others are coping as I thought this would be my last Christmas. 3 years and your doing ok is good to hear, it's the thought of chemo for ever as my last treatment 2 years ago was docitaxel and I really didn't cope well. Be interested in how you get on with cape. All the best... polly  xx

I get results of the DPD enzyme on the 19th x

Hi Pollywollyb

Just to say my start on cape was delayed as first DPD test went astray. However, I started the tablets on 28th, 4 tablets 2x per day. So far, so good. No side effects yet, so fingers crossed. Hope your DPD came back with right result.

xx

I'm so pleased for you, I have been looking out to see how you got on. I'm sure the test was OK as the hospital phoned me to confirm my app to pick up my Cape on the 4th. Please keep in touch, we are in tier 4  in Somerset as of tomorrow, I didn't intent doing anything for the New Year anyways lol, all the best ownedbystaffies xxx

Hi Pollywollyb

How you feeling after 3 or 4 doses of cape? I hope ok. Suprise suprise here we are all in lockdown - so at least all in the same boat.

x

Hi ownedbystaffies, I'm not bad actually, my problem is I got the cold the day after I started, typical, I've not had a cold all winter and this is a stinker.. how are you feeling, well I hope, yep lockdown again, I don't mind this time as it's cold and damp and horrible, I walk the dog then stay in the warm lol. I'm struggling with the alarm at 6.30 am and having to eat that early so as to have 11/ 12 hrs between doses.. take care in this horrible pandemic and hopefully we get a Vaccine soon xxx

Hi Pollywollyb

Sorry about the cold, hope it passes quickly . I am intrigued by your statement about 11/12 hours between doses. My instructions make no such mention, either on the box or in the instruction leaflet. Who told you that? I take mine just after breakfast at 9.30 and then again at about 7.30 after evening meal. I would hate to be setting my alarm for 6.30 as I am a late riser and if I cant be as a poor cancer patient, who can be?

I have just taken my final dose of the first cycle so 7 days off now. Still no side effects and am hoping that is how it stays. Wishing the same for you.

xx