Secondary breast cancer spread to the bone.

FormerMember
FormerMember
  • 112 replies
  • 38 subscribers
  • 80700 views

Hello, 

yesterday I was told my breast cancer has spread to my spine, I was always told it was w possibility but always hoped it wasn’t. Chemo has been stopped and I am now being put on targeted drugs to control the growth and spread. I am devastated by the news. I am 35 and have a 10 and 14 year old son. I am looking for anything positive to try and help me get my head around this. I’ve read a lot of stories on here and they have given me hope. I have been told I’m expected to do well on these drugs can’t remember the names, something beginning with L and then G and a bone strengthening injection. I am totally petrified. 

  • FormerMember
    FormerMember in reply to wino

    Hi honey a busy few days for you ,yes positiverty never my strong point but hey time to change this and we can do this,yes scan done now just wait for the results and still waiting for the biopsy results,never easy ,and I can honestly say the support and kind words here have been such a help ,don't no wat I would do without you all ,take care and keep safe and well bless you honey,let you no how it all goes xx

  • Morning Greenslove                                                                                                                                                                                                                                                         Good luck with your scan today. There are lots of cancellations at the hospitals now so i hope yours is still going ahead.I am worried that i wont get my oncology appointment let alone any treatment, a lot of people on this site have had their chemo stopped due to the virus,i have not even started mine so i am really concerned that this could be it for me, sorry hope i have not brought you down with my moaning i really hope it all goes well for you, just ignore me i am just worried Take Care let me know how you get on Xx

  • FormerMember
    FormerMember in reply to wino

    Morning Wino

    I can understand your worry in a big way, its so alarming what's happening. 

    I got a call from the hospital last night cancelling my appointment. 

    Have you got any appointment booked yet?

    Stay strong, keep in touch xx

  • Hi Greenslove                                                                                                                                                                                                                                                      I am sorry to hear your appointment has been cancelled,god only knows when you will get another one it,s so worrying.I have just phoned my hospital,s oncology department and i have not got an appointment yet the girl was lovely and said she will see i can see a senior chemo nurse if so could get an appointment in the next two weeks but if need to see a consultant it will be considerable longer, so fingers crossed. I think i will only need tablet form chemo so she might be able to help its just so stressful being in limbo.Take Care Xx

  • FormerMember
    FormerMember in reply to wino

    Hi Wino

    Have you heard any news yet? I just feel so worried for you, i really hope they get you on the right treatment ASAP.

    Nothing to report with me. 

    Very strange times, i hope you have good neighbours who are able to help with shopping. 

    Keep strong and safe xx

  • Hello Greenslove                                                                                                                                                                                        I am on the phone constantly trying to find out what is happening with my treatment. The latest news is i will not get to see a consultant till i have a bone biopsy, i have been told i have been referred a hospital in Oswestry as our hospital don,t do them, but like all hospitals they are all being taken up for corona virus. I am going to phone up the hospital i have been referred to next week to see if my referral has arrived and if they will do it. I could do it today but then i would know for sure and i would then know NO Treatment for me as they need this biopsy to give me the correct medication. This is the only thing i have got to hold onto at the moment, so i need this weekend to be calm before i find out my future (if i have got one) next week. I know i am not the only one who,s life has been turned upside down as many on this forum feel like me and rightly so we feel like we don,t matter.I get cross when i hear of people moaning about self isolating and how bored they are, they should think themselves lucky,at least its not going to shorten their lives.Without treatment i don,t know what is going to happen to me and i don,t want to tell my family because they are already worried enough. I  will just have to wail and see. Xx 

  • Hi Greenslove                                                                                                                                                                                                What a moaning old women i am, i am feeling a lot better now. Ownedbystaffies has made me see it another way and i feel a lot better. Just venting off. I have been for a walk i am lucky enough to live in a rural village and there is beautiful countryside all around, so enjoying positive mental mindfulness.Please keep safe and well Xx

  • FormerMember
    FormerMember in reply to wino

    Hi honey ,worrying times for all at the moment,I have had biopsy results and have inflammation of the stomach ,must keep taking medication for that ,had to chase after a number of phone calls to the doctor then eventually rang the hospital ,who were able to give me the results,I am still waiting on ct  scan results ,have been told will take up to ten days so will be chasing those I expect have to wait for the report ,still not feeling well,it's all a waiting game for all and even more so at the moment,have just been out walking and certainly does help clear your mind,will let you no when I hear anymore,let me no how you get on and when your appointment will be for your biopsy,keep safe and take care honey ,thinking of you xx

  • FormerMember
    FormerMember in reply to wino

    Hi Wino

    You are entitled to moan, it would be bad enough finding out your news without all this going on too. 

    Glad you are feeling a bit better about it now.

    This is the place to let off steam. 

    Thinking of you xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Lollipops84. I was diagnosed in November last year.  I’m a lot older and hate to hear of someone as young as you fighting this battle.

    It takes time for everything to sink in.  Only now am I able to think that this is a treatable disease even though it’s gone to our bones. Mine too is in my spine and rib. Also suspected in my lung but can’t takes biopsies.  I am now on chemo as an ongoing treatment so different course of treatment to yours.  I understand how cold and dark everything seems at the moment.  It’s early days for you.  But I promise you it does get better.  It’s a scared piece of new to receive, that breast cancer has become bone cancer. I think we still think of cancer as we did twenty/thirty years ago.  When in fact things have changed so much. Treatments are more personalised and targeted.  Your dark days will come and go though hun so please understand those moods and just take time for you at those times.  I write in my Mrs Angry book when I’m struggling.  I’m full of anger sometimes and vent it there.  Sometimes it’s enough to calm me, sometimes I will need to vent to my husband or should I say at my husband poor man.  It’s hard to put into words what this does to us mentally and emotionally, and I think it’s so important for us to try to be positive about how we could live for years with this. So many people have stories of 15/20 years and more still going strong. Im sorry I’m rambling now, if you need any emotional support hun pm me, I would be happy to offer any help I can, venting is good xxxxxx