Scanxiety results

  • 34 replies
  • 34 subscribers
  • 33059 views

Hi

I am not looking for answers as I know this is a decision only I can make.

I am due my next scan next week and whilst I don't fear this - I do the results (don't we all).

Anyway, I am due to go away towards end November and my dilemma is do I request the results before or after my break.

I really don't know am leaning towards before but what if they are dog shite then I am not sure if I will enjoy my holiday - if I don't get them then I will be wondering.

Is or has anyone else been in this position and what did you do,

IamLyn  xx

  • FormerMember
    FormerMember

    Hi Lyn 

    You will have had your scan now and not sure how long it takes to get your result. 

    I am always on the side of I would rather know before rather than after. If I left it I would keep thinking about it and wondering what the result is. If they are good it's a good excuse for a holiday and if they are terrible it's a good excuse for making it the best holiday ever. 

    In reality though I just get them when the oncologist realises (usually because I have got his secretary to chase them) they are in and read. 

    Good luck 

  • Hi Maz59

    Thank you for your response.

    I have had time to think about what I want and yes I am 90% sure that I will ask for my results before I go away.  I don't have an Onc appointment until Mid December.  I think that it atrocious given that I had my scan last week. This means if I wait for that then it will be at two months before results. 

    Last scan result was given to me by BCN because I simply did not want to wait two months for a scan result.

    I am back up the hospital next week for next lot of chemo tablets and bone juice so I may just as well ask then if the results have come in. 

    You have given good sound advise, this is what my friends have also advised me as well although I know ultimately the decision is mine.  I think I would rather go away knowing than being anxious and wondering.  This holiday is truly an dream one and I don't want to spoil it by my anxiety.

    So time to take my head out of the sand, put on my big girl pants and ask for the results before I fly off for some winter sunshine and make some memories.

    Thank you Maz -  Good luck you

    Lyn x

  • FormerMember
    FormerMember in reply to IamLyn

    Hi Lyn I have just read your post and an alarm bell is ringing. Is your holiday in this country? I only ask as the age old issue of insurance and informing them comes to mind. 

    I find it impossible to get any medical insurance now for abroad. I am seriously considering taking one more risk early next year depending on what happens with Brexit. It will have to be very carefully thought out though as I don't want to lose everything if I take ill. 

    Hope all goes well and you have a great time. 

  • Hi Lyn

    i think you are doing the right thing! All will be well and you can fly off feeling good! 

    I had mine just recently and no change which is good news . Always the fear there but trying to enjoy just being here.

    thinking of you and sending positive vibes

    Boogirl

  • Hi Maz

    Holiday is in Mexico - I got a great deal on the Insurance (in the circumstances) £220.00 for both my partner and I.  After the review on Travel Insurance on this site I was please with that.  Onc was happy that I should go last scan results so just need a 'fit to fly' letter from her which I will get.  I think if was USA then insurance would have been 10x more.

    So looking forward to it.  Just the results to get through now. x

    Hope you do take a break next year - initially we were going to go next year to cover our Birthdays but I just did not want to wait - I am an impatient person...... and this deal came up we did not want to lose.  It must have been fate as had we of booked for Feb it would have been with Thomas Cook......... so would not have been going anyway.

    I have booked it in between blood tests, bone juice and chemo tablets so took a bit of working out.

    x

  • Hi boogirl,

    Thank you for your support.  Great news re your results sending a big congrats to you (if we can call it that).

    Onwards we go BCN appointment next week may ask then if results are in (gulp). Want to go and enjoy this so much have plans to swim with turtles and Whale sharks how good will that be...

    XX

    Lyn

  • It will be amazing!! Hope you have the most amazing time. Make sure you post when you get back and make us all jealous! Let me know how your results go but I'm feeling really positive for you.

    bon voyage!

    boogirl xxx

  • FormerMember
    FormerMember in reply to IamLyn

    That is a good deal well done I was quoted over £2000 for a 4 night break in Madeira. I nearly fainted. It always annoys me as it is the oncologist and nurse that encourages me to go away so he is fine with it. We are all checked out regularly so more chance of the person' sat next to me needing medical attention but we get hammered. 

    Hope you have a wonderful time and those memory's will get you through the next bout of treatment I'm sure. It is always reassuring when things just fall into place. 

    Good luck for scan and hols. 

    I saw my oncologist today and let him know I was going on Sunday for my scan. I was really washed out today RT fatigue setting in but just 3 more days to go. He said he would book me in for a 6 week appointment so I told him I was not waiting 6 weeks for the results. He will have forgot once he left the room so I will email his secretary in about 2 weeks and see if I can be squeezed in. 

  • Maz

    £2k is appalling.  I got mine from Boots, I did not shop around to be honest, they were the first company I tried and I thought rather reasonable so took this up. Perhaps try them.

    sorry to hear fatigue is an issue for you at moment, its frustrating isn't it.  I went to visit my brother over the weekend, and we walked around the city and when I got back to his my fit-bit told me we had walked just over 5miles !!!  I was knackered as we had some steep inclines but blimey I slept for 8hous that night so was pleased with that. 

    I truly hope your results are positive for you, I feel that we are just another number to process sometimes and I agree waiting 6 weeks is rubbish.  We just need to process and move on with our next stage and this wait is another thing we don't need.  I know that once I get the results the next scan will be looming on the horizon so the merry go round starts again!

    Please let me know how you get on with your results and I hope you manage to get away.

    Good luck x

      

  • Boogirl,

    Thank you so much - not going until end November but what a nice way to end the drama of 2019.

    I am a believer in fate so this holiday was truly a gift in more ways than one and as they say seize the moment.

    Lets see what Wednesday brings when I go back to hospital and have my bone juice and pick up next cycle of tablets.

    I hope you are well on you own journey.

    Much love from a fellow traveller.

    xxx