I was diagnosed last September with metastatic breast cancer with spread to my right lung. I was half expecting to be diagnosed at some point as both my mum and my maternal grandmother had breast cancer, but just wasn't expecting the diagnosis to come at 59...a lot younger than they both were at diagnosis.
Having been seen back in January 2025, biopsies then, showed fibrocyctic changes, I was put back into the 3 year cycle for routine mamogram. Fortunately, I didn't wait that long before referring myself back to the clinic in July 2025, with stage 4 diagnosis coming in September.
I haven't had surgery or IV Chemo but I was started on Letrozole initially then Ribociclib. The Ribociclib dose initially was 600mg but after a couple of episodes of neutropenia my dose was reduce and has subsequently been reduced again. I am now on 200mg daily. However, the pattern seems to be that my white cell count falls to about 0.8 after one weeks break then climbs back to 1.5 after 2 weeks break. So my question is, is there anyone who takes Ribociclib on a 5 week cycle, 3 weeks on and 2 weeks off? Are there any benefits/problems with this regimen?
