Cancer Recurrence

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Hi all

So I had breast cancer three years ago, two operations, chemo and then radiotherapy. I've been having annual check ups since then, at my check up a week last Tuesday I happened to mention that I'd been to the doctor's with pains in my side so the consultant requests an urgent CT scan which I had the following Thursday. I received a phone call last Thursday to say they'd made an appointment for me this coming Tuesday. As they didn't just tell her over the phone that the scan was clear I'm convinced that I'm going to be getting bad news on Tuesday and I'm getting myself into a real state about it. 

I know pains in hips can be a sign of cancer coming back in the bones and that if that's what the pain is they won't be able to cure it but just try and manage it. 

I'm so scared of what they're going to say, does anyone have any experience of this and if so how they handled it please? 

  • I have metastatic breast cancer. My spread was to my liver and picked up as an incidental finding on a CT scan done for other reasons. I was still in the middle of chemo for my primary tumour when they found this. A bit of a shock as I hadn’t had lymph node involvement- - the cancer must have travelled by blood before my primary surgery. I have been living with this since 2022. It takes a bit of adjustment as initially you are sure the world is ending. But over time you come to accept you are living with a treatable chronic condition. In my case I achieved a stable remission and haven’t needed any treatment for s while. Wishing you all the best. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Hi

    Thanks so much for your reply. 

    This is really reassuring to hear. It's good to know that just because they can't cure it this doesn't necessarily mean the end. 

    I'm really pleased that you're now stable and not needing any treatment.  

     All the best for the future

  • Hi KMT I wanted to wish you luck for tomorrow.  

    Lee x

  • Hi

    Thank you so much for that. I'm not going to lie I'm really stressed about the appointment but at least once I've been ill actually have some answers. 

    Thank you 

  • Hi KMT  are you taking someone with you tomorrow?  My husband came with me and he remembered a lot more of what was said then I did.  The waiting is the worst at least when you know you will be able to deal with it.  Good luck and I am happy to chat.

    Lee x

  • Hi Lee

    Initially even though I thought they were going to give me bad news I wasn't sure if I was just overthinking it so said I'd go on me own, but I've got myself into a bit of a state not knowing what they're going to say and I don't know how I'll react if it is bad so I'm taking my partner with me. 

    What's sticking in my mind is a conversation I had with a Macmillan nurse whilst having treatment last time, I asked about if it comes back, and she said if it comes back as a result of having it before then we wouldn't be able to cure you but should be able to treat you. 

    If the scan I had done had shown nothing I imagine they'd have just phoned me with that information as no point me going in for an appointment when other urgent cases need that appointment more so that's why I'm assuming it's showing something.

    Thanks for your messages, it means a lot.

  • Wishing you all the best for today  

    Let us know how it goes - this community is here for you. Even if the news seems bad there is always hope with modern treatments. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Hi KMT, sorry to hear you are going through this awful time of waiting for results. I totally understand how you are feeling, I too am waiting results at the moment.

    I was diagnosed in Jan 2024 and finished chemo in July of that year. I've recently developed peripheral neuropathy in my fingers and oncologist said this is unusual after such a long time. He sent me for ct scan of my brain and mri of my spine the following week  It's been a week and a half but have not had any news yet. My next oncology appointment is 3rd June. I've had the opposite thought to you thinking they'll phone to come in earlier if they find something. Quite dreading getting any call from them at the moment. I wish you good luck for tomorrow. Xx

  • Sorry to hear that you are waiting on scan results.  Hopefully they won't find anything serious.

    Best of luck with your results when you get them.

    Daisy53

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  • Hi 

    Thank you for your reply, isn't the waiting just the worst part!! Even though they collected me last Thursday and I'm in tomorrow it still seems like ages to wait. 

    Lets hope in your case that no news is good news and you won't hear anything until your appointment. 

    Take care