I have been strugging with Letrozole aches and pains and oncologist moved me to Anaztrozole which a week in feels even worse. I play high impact sport and it's really doing my head in (age 56). I worry about loss of bone density and wondered if I was supposed to have a bone density scan at start of treatment (6 months in now)? Has anyone had this and/or bisphosphinates to counteract bone loss? I don't rate my oncologist in that she always cancels appointments then rushes me through them in an irritated way so I never end up asking all the questions because I get flustered.
Anyone asked for 2nd opinions of treatment on NHS?
i think bone density is measured by scan at the start and then every 3 years or so. The best thing for bone density is exercise, good diet and making sure we have the right amount of vitamin D alongside vit K (your GP could check with a blood test). Its fantastic that you are so sporty - so good for your bones to be doing that. I do resistance training for a whole body workout as well as cardio. Personally I find some things irritate my joints more than others - dairy is one for me, amongst others. Things that help me include a healthy diet - see world cancer research find diet. See what suits you. I also like sour cherry for really achy joints. I have also found that the coatings of my anastrazole make a difference to my side effects and it may be worth trying different ones to see what suits you best. I got on really well with a brand that has now been discontinued so back trialling other brands to see what works for me. My GP will hopefully give me another brand specific prescription when we find the right one again. Your AI brand and bone scan could be organised through your GP if your oncologist is unhelpful. Ive found my GP to be incredibly supportive even though we mostly communicate with these strange online appointments. Its very time efficient and I find the GP listens and helps me on my way.
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