Hi all, I was dignosied with breast cancer in Oct 25 was informed that its hormone receptor positive and had my mastectomy one breast and lymphactomy first week in Jan 26. End of Jan 26 at meeting with doctor was informed that tumor was around 11 cm and outof 14, 7 lymph had cancer. I am advised to go for chemo followed by radiaition and hormone therapy.
I am not sure if chemo is required if cancer was hormone receptor positive and what is the timeline if chemo is required to start after mastectomy. can this be just over 95 days? I am still recovering and mentally not strong to go through chemo (if necessary) so wish to start just end of 3 month when someone is available to look after kids so I get relaxing time to recover.
also does what is long term effect not having chemo for hormone receptor positive breast cancer? is there a chance that it wil spread to organ?
Thanks for your support
Diagnosis August. Two lumpectomies for grade3 tumour and finally got clearance (13.7 cm) with mastectomy just before Christmas. I’ve seen the oncologist and will probably start chemo at the beginning of March, around 3 months after mastectomy. My lymph nodes have gone (only 2/23 -ve) and I’ve been told the chaemo is preventive so I’m happy to wait. I’ve been told that radiotherapy wont add much advantage so I dont plan to have that. I got the impression that 2nd to surgery the chaemo would do most of the heavy lifting for me. He will recommend the hormone treatment that comes at the end, though. Shouldn’t be so bad for post-menopausal me. I agree that chaemovdoesnt sound much fun at all ️
Apart from that, our cases seem to have parallels.
I am glad to be having the three month break. It’s far too soon for you to be thinking of chaemo now if your mastectomy was clear and your nodes gone. You will feel much stronger within a couple of weeks. Have you had a CT scan to check that you dont have spread to other organs? If not, ask for one. That should help clarify things.
You will feel better about the challenges of chaemo in a few weeks, anyway. It sounds as if you should get some sleep now and do some nice, ordinary things on your own or with the kids. There’s plenty of time to book a chat with a nurse on this site or from the hospital and plan a schedule for treatment that works for you. You have a say in this, or should have.
Facing all this with a young family is an extra challenge I cant comment on. There are young mums here who might be able to help.
There appears to be a support group for people starting chaemo at the same time here or on the Breast Cancer Now site. I thought I d sign up to that when I have a date.
Good luck with everything
Theresa
Hi
I’d take the advice from your oncologist on whether the chemo is time sensitive. I started my chemo 6 weeks after my lumpectomy - they need to give you time to heal - and maybe that is longer for a mastectomy? But I was keen to start it as soon as was recommended. Like all our treatments, the sooner you attack the cancer, the less time it has to spread
Good luck - you’ve clearly got an awful lot to deal with x
Many thanks for extensive reply. I did had CT scan and there was nothing found that it had spread to organ. I was also told that chemo is preventive to kill remaining cancer cells (circulating) which could not be picked and as half of the nodes were positive it was recommended.
lets see what oncologist say in few days time for appointment.
how do I book chat with nurse on this site please?
Actually it’s the support line team who offer advice here or may put you through to Macmillan nurse in your team. The people who offer a hotline to a nurse direct are BreastCancer now - the people who provide all the leadlets. I actually look at that site more, probably
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007