I never thought I would start 2026 with 'I am new patient'...

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I was recently, (last week), diagnosed with breast cancer at 39 years old. That was my first appointment with the breast surgeon and the assigned nurse. I was told that my cancer is 'curable' but at the same time looking at my pathology results it's classified as metastatic. I had CT and MRI on Tuesday and I am terrified that I will go from 'curable' to 'incurable' within the space of a week. 

I don't have a full treatment plan yet as we're waiting for my HER2 results, which originally came back as borderline. 

I am still processing everything that is happening and trying to stay positive but waiting for the answers/full diagnosis is really hard :(

  • Hi Dags

    Welcome to the forum, I'm Daisy53 one of the Community Champions on this forum.  I'm sorry to hear that you have been diagnosed with breast cancer.  The waiting for results is definitely the worst part of being diagnosed with cancer, but once you have your results and you start treatment things should start to look better.  Try keeping busy while you wait for your results as that can help keep your mind off them even if only for a little while.

    Wishing you the best of luck with your results.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hello Dags

    I know being diogenesed with breast cancer and waiting for your results and a treatment plan can be completely overwhelming. It can be very scary and lonely at times. You're in the right place. Try not to think to far ahead, try and take each day as it comes. I  tried to divert my thoughts, tried to keep as busy as I could. When you have spare time, maybe do something you enjoy. Maybe read a book,  watch something on TV, listen to music. Anything that will help you to divert your thoughts.

    Wishing you all the best with your results and treatment plan 

  • Hi Dags, the waiting part of this journey is definitely the hardest. The not knowing and the feeling that you are not in control and others are making the plans for you. That said things will start to get going and once they do, the appointments, scans etc will become your new normality. You will meet some incredible people along the way and make new friendships. I carried on working right up until having a picc line put in. The distraction stopped me from overthinking and kept me grounded. My journey is probably different to yours as I have triple negative breast cancer. So l have just finished 6 months of chemotherapy. I am having surgery this coming Wednesday. I don’t know where you are in the country but check out any local cancer charities in your area, they will probably offer counselling, complimentary therapies etc - put your name down for those, there probably is a waiting list, but well worth doing. Ask your gp for the free prescription form. Sending big hugs to you and your family as you start this journey. 
    Jen xx

  • Hello Dags,

    I messaged a few hours ago. Thought i'd tell you about my journey. I worked right up until the first day of my treatment plan. I kept as busy as I could to divert my thoughts. I have HER2 positive (triple positive) grade 3 cancer in my right breast. I had 4 x EC chemotherapy every 2 weeks followed  by 12 x weekly paclitaxel alongside phesgo injections every 3 weeks (to target the HER2 positive) I had a single mastectomy & SNLB (removed the first 4 lymph nodes) 4 weeks ago with immediate DIEP reconstruction. I have an appointment next Wednesday to discuss kadcyla & letrozole to reduce the risk of a recurrence. When you first receive your treatment plan it can feel completely overwhelming. I tried to break it down into sections, and tried to focus on each section rather than thinking to far ahead. I would definitely try to get some counselling, to help you to process your diagnosis & talk about your feelings. When I was diogenesed, I was on an emotional roller coaster. I was extremely lucky to have a psychologist through occupational health. She has helped me massively.  

    Wishing you all the best x 

  • Thank you Daisy53 for your message and kind words and I am sorry for responding so late, I did not have my notifications turned on. I feel a lot better and more positive about my situation. I am still waiting for various appointments to agree the treatment plan but I feel somewhat prepared for what's to come. 

    Again thank you for reaching out, I really appreciated it.

    Dags xx

  • Thank you for your message. I am in a much better place now although I am still waiting for my treatment plan. I am hormone positive and HER2 negative. I was initially told we will start with the surgery but this plan has changed now and they recommend chemo as a first step. I am meeting the onco team next week to agree the plan. 

    I've done some research and got my eyebrows microbladed for the first time ever. This gave me a sense of still being in control, even in a small part. 

    Thank you for sharing your journey with me, I really appreciate it !

    Dags xx

  • It's good to hear you're in a better place.

    I also got my eyebrows microbladed for the first time when I was diogenesed (i'm 52 today) it helped massively, I lost all my eyebrows, but no one could tell :)

    Maybe ask your oncologist about the cold cap. I cold caped with every chemotherapy treatment. I still lost a lot of hair either side of my head, but kepted quite a bit on top. The cold cap not only helps reduce hair loss, it also helps with the regrowth. My hair started to regrow towards the end of my chemotherapy. I finished chemotherapy in November & no one would know, my hair has grown back, no patches, it just looks like I have a trendy pixie cut. I used simple shampoo & condition, I washed my hair once a week while I was cold caping. 

    Wishing you all the best xx