Diagnosed with invasive lobule BC on Monday

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It all still feels like a bad dream at times, trying to get my head around it all. I’m awaiting an MRI then further biopsies for some calcifications that were not biopsies previously, so it’s all pretty scary right now.

the immediate issue I have is stopping the hrt im on, its been cut down to be weaned off in a week or two, but already I have the lower pelvic area pain , back that the hrt keeps under control . I’m dreading many aspects of the treatment,the surgery obviously, and all that it entails, I’m really anxious about coping with that and how I’m going to feel about it. but also that I will have to be on drugs that block the hormones,the cancer is very reactive to them, I am already back into the genitourinary issuesi had pre hrt so can’t imagine how it’s going to be long term.

can anyone offer any hope on this front, thank you. 

  • Hi, welcome to the forum, sorry to hear of your diagnosis. Stopping HRT for hormone related cancer can be really challenging. My only advice is to keep talking to your medical team so that they can help you assess the impact of the side effects and your quality of life. Best wishes 

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  • Hi, I have just been diagnosed with grade 3 invasive ductal carcinoma and have to start weaning myself off HRT. I am dreading it as I had awful menopausal symptoms too. However, my consultant said I could continue using Estriol vaginal oestrogen cream as it will not travel away from where it is applied. This will help with genitourinary symptoms. Has this been suggested to you? If not it might be worth discussing with your medical team.

    Best wishes