Denosumab

Hi, whilst I'm on letrozole and zoledronic acid, I'm not on denosumab so I'm sorry I can't help you. But I just noticed your post hasn’t had any replies yet and it's dropped a few pages as the site is quite busy.  My response will bump you back up to the top and I hope someone with the right experience will be along soon to answer you. Best wishes 

That’s so kind of you, thanks. It would be good to have first hand feedback. It’s the unknown which poses the biggest challenge. Best wishes to you too.

Hi Optimistic,  I am on denosumab and have been since December 24 so about 11 months.  I dont seem to have had any side effects with this.  I am on exemastane and adcal for my bones.  So I wouldnt worry too much hopefully yours will be side effect free too.  Big hugs.

Lee x

Thanks Lee, I’m waiting for a phone call to discuss this with the consultant. I have no obvious side effects with letrozole, or had any with the zoladronic acid infusions. I’m still trying hard to stay optimistic on this cancer journey. I’ve had lung, skin and breast cancer, have to keep on fighting. Thanks and a big hug from me. 

Hi Optimistic, yes we just have to keep on fighting.  I had breast cancer in 2012 and had surgery, chemo, radiotherapy and then tamoxifen for five years.  Skin cancer five years ago.  Diagnosed with secondary breast cancer last year with mets in most of my bones including pelvis, spine, ribs and skull.  I am enjoying my life and also staying positive but it has been hard.  Good luck.

Lee x