Hi everyone
An update from last Post and hoping someone can help me. I was told by breast surgeon grade 3 TNBC spindle and lobular cancer and CT scan of chest and abdomen came back clear apart from shadow of abscess but tumour also found. Referred for bone scan and oncology. Had my oncology appointment on Wednesday and they found a suspicious mass on scapular and have went back to my CT scan in August and seen it and married them up and have upgraded me to Stage 4. She said there will be no chemo as it has now metastasis and they are going to do radiation to just the scapular area and keep chemo in back pocket for recurrence. I said I don't understand why no chemo to original area and she told me chemo needs to have something to measure and I said but you were going to do it before bone scan and she said its too late now as it has spread to that area. PET scan done today but I am feeling they are just giving up and giving radiotherapy for pain, as I have some pain in back. I asked about the spindle cell since this is so rare and she said they are just treating as TNBC. Can anyone help me get my head around this. Are there any positive stories of TNBC metastasis?
Thanks
I have just been diagnosed with above, I have been to hospital from April 2025 complaining about lump to be told it was glandular tissue change due to hormones (menopause) I have just turned 49. Beginning of July 2025 the lump had got bigger from 4mm to 3.2cm. I was still complaining about "stingy" pain at my sternum. At breast clinic consultant said he go cut it out under local anastetic so I said yes, it was an abscess told him pain was still there. So basically within 5 weeks had local anastetic 3 times and breast cut open, general anastetic x 2, the 1st GA he explored and found a lump "hid" in my muscle at chest wall, 3 strong antibiotics and then told above diagnosis. Told they couldn't answer questions about prognosis as such a rare finding and more removal of tissue to be examined. I am still waiting on results and I am finding it really hard and so scared as they can't really explain it all.
Sorry for long story but if anyone has this or can give me some reassurance I would greatly appreciate it
Thanks
