I was diagnosed with BC in October 2022. Grade 2, I had a lumpectomy & lymph node removal, thankfully lymph nodes all clear.
After treatment I was placed on Letrozol, that did not work for me. I was then placed on Tamoxifen, this gave me terrible pelvic pain and a thickness of the lining of the womb. I was then put on Exemestane, I have been on this for about four months or so and have terrible bone pain in my shins. And my fingers are just so painful, worse when I close my fists. The pain is so much worse at night when I’m trying to sleep.
I am seriously thinking of stopping it as my quality of life is nil at the moment. Has anyone else had similar symptoms.
To Valleyside
After being on Letrozole, I was on exemestane until a couple of months ago, when I came to my 5-year finish. I found it difficult but not as bad as for you. After 4 years, very overweight and with very much worse osteoarthritis, I was referred back to my oncologist, who suggested trying different brands, but this can be more difficult than you think, and as I was prescribed the original brand, Aromasin, I decided to stay with it. I did aqua aerobics 5 times a week, and I found that helped. Before you give up entirely, ask for a break of say 2-3 months, and this will give you a chance to see if they are the cause. I say this because after 2 months free of the anti-hormone medication, I have not noticed a great change in stiffness, although my case is clouded by me having a foot operation that has left me immobile for 2-3 months. But a break would give the chance to make a more informed choice.
You could also look at the predict site. I don't have the details to hand, but it has been mentioned on this chat line before. Good luck and I wish you well x
Hi all, I have been taking exemestane for almost 2 years having previously been switched from anastrosol which I was on for a year. They both seem to give me joint pains after a while, could be due to different brands, but difficult to say. I am really struggling at the moment with wrist and finger pains, plus one knee and now developed pain in my upper arm. I am supposed to be on these for 10 years, not sure I can carry on much longer as I am finding them so debilitating. Does anyone recommend taking a break for a while? Bit worried about stopping them altogether.
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