Abemaciclib mucus in poop breathlessness and trapped wind

We must have started on the abemaciclib at a similar time, I finish it in early May next year. I’m also keen to be done with it whilst also keen to do it for the allotted time. 
I will be glad to start to sort out what has been due to letrozole and what’s been the abemaciclib! Current prescription is that I’ll have nearly 3 years left on the letrozole. 
Im sure that my gut symptoms, occasional excruciating abdominal pain, runny eyes, nose etc and slight cough have been the abemaciclib whilst last year’s 2 UTIs and itchy vulva area, probably letrozole. But then again possibly aided by the immune system interference from the abemaciclib ..‍♀️My jury of me is out on the hair thinning, finger and toe numbness, breaking nails but time will tell. I had letrozole for nearly 20 weeks before the abemaciclib and it wasn’t doing much to me apart from reigniting menopausal hot flushes, though not as bad as back then. However 20 weeks isn’t necessarily very long…

After a terrible start to abemaciclib with diarrhoea, watery, mucousy, I blanded my diet right down which really helped. Then gradually started back on more roughage etc, pulses, salads to what was normal for me and found I was fine with a ‘loose stool clearout’ once or twice in the morning. On fairly rare occasions I have had to have a bland day if I’ve gone watery and I may miss a pill or maybe two, as sanctioned, in fact advised, by the oncology consultant. Once I’m done I’ll pay more attention to symptoms I’m left with and maybe to the brands of letrozole to see if there’s a difference.

Anyway all the very best for these remaining months, and I hope the winter months are ok for you. xx

Hi, I’m nearly finished Abemaciclib, but a couple of weeks ago I had 5 days where I just passed watery stools. One night I went to the loo12 times just passing watery stools. I was becoming dehydrated so stopped Abemaciclib for 4 days.
I have started to have natural organic kefir daily and it seems to have helped. I put some granola in the pot to sweeten it up a bit but for the past 10 days no diarrhoea. For me this has not happened during the past 2 years. This may just be coincidence but I’ve 17 days to go and I’m continuing with the kefir. 

Hi, I make kefir and have it with my cereal every morning. Years ago a friend gave me some kefir ‘grains’ (like tiny cauliflowers) and said how easy it was to make the stuff, much simpler tha yoghurt which she and I used to dilate 70s early 80s.  It is- you just put them in milk, leave out of the fridge for 12-24 hours depending on the season, then it can be in the fridge. I strain it then eat and drink it. You can do the whole fermentation in the fridge, it will take about 4 days, but it’s good if you’re going away as it won’t come to any harm. I’m sceptical about beneficial bugs surviving my stomach acid, but I like it and maybe it has helped me with the diarrhoea as I’ve got off relatively lightly. 
I rinsed the grains, blotted them in kitchen paper and put them in the freezer when I started chemo but got them out when I’d done the ECs and resumed fermenting and consuming throughout paclitaxel and since. My oncology nurse is from Eastern Europe and seemed surprised that I’d even stopped- she said that a lot of guidance over chemo is quite heavy duty, but there are some very serious levels of immunosuppression beyond what a normally healthy person on chemo might experience.

All the best for your remaining weeks on the abemaciclib - and beyond obvs

xx

dilate yoghurt! Where did that come from.

1. Hi cynoptimistic yes we must have started about the same time x I will be so happy when im done with the abemaciclib x I know it's an expensive drug and my consultant had to apply for funding x so I'm lucky to have it x im on tamoxifen with my abemaciclib x I don't like the upset bowels one bit. The amount of times I've sharted. I get no warning good job I've worked in care and have a sense of humour. My ct scan for my lungs is booked in for next week sometimes my oxygen level is low like 92 if I test when breathless x I've never been advised to miss a pill x I have worked out that onions, leeks,  sushi (vegetarian or chicken) are excellent for accidental explosions. I hope your remaining months are calm ones x im not good at a bland diet x they say its boiled rice, poached chicken, apple sauce and toast x sorry for the delay in reply busy planning and making for fair x

Hi Shade i did buy some before from tescos the organic nothing in it type. Lol I hate dairy but im willing to give it a try. Our information sheets from the hospital say avoid prebiotic like yakult, actimel etc

x poops its not nice when its watery for so long x I do sometimes be good and take the loperamide, it doesn't always stop it though x I grab the soothing bum bum cream to calm the discomfort,  no wonder babies cry x. I bet you will be dancing when you take the last abemaciclib xxx I tried kefir years ago, I brought some grains on Ebay lol if I get on with it I'll ferment some more x sorry for delay busy times crafting x

I don’t miss often at all-  most significant periods were for a nasty bout of Covid, and twice for UTIs while I took antibiotics. But some months I have missed one pill or two. 
I will be glad to finish and then see how I am on just the letrozole..

All the best xx