Fatigue has hit like a ton of bricks

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Hello everyone 

Two weeks ago I had my 5th chemo session which was my 2nd Docetaxel treatment. About a week ago fatigue hit, and I just can’t shift it. My whole body aches when I do even the smallest of tasks - laundry, cooking, walking up the stairs. I have to sit and get my breath back and wait for my muscles to stop screaming. I’ve tried walking short distances but it makes me want to cry, it’s so hard.

Fatigue-wise I’ve been ok up to now, and have shaken off the side effects of the Docetaxel for this round, so this is extra frustrating. They told me that fatigue would be the thing that would accumulate but I never anticipated this! 

I’ve got my final chemo one week today (whoop!) but am now anxious that it is going to add to the fatigue alongside everything else. Has anyone else experienced this level of fatigue and if so, how long does it last?! 

thanks
Sam

  • Hi Sam, sorry to hear about the fatigue. I found docetaxel very very challenging and experienced a lot of fatigue. But what you’re experiencing sounds extreme, it might be worth contacting your team in case there’s something else going on. Sleep and lots of rest helped me a bit, and adjusting my expectations of what I could manage - which was really very little. Gentle movement that I could do seated helped, gentle stretches. Needed help doing housework and wasn’t able to work at all through chemo. I hope it improves for you soon - and well done - you’re nearly at the end of chemo! 

  • Thank you, I’ll contact my team. I want to make the most of time feeling relatively normal between cycles but my body is saying no! Maybe I need to listen to it, but this feels extreme. 

  • Hi Sammy, I’ve just had my 4th round of TCHP. This has been the worst yet. I’ve spent pretty much most of the weekend in bed, even getting to the bathroom has been hard work, my legs are like a baby giraffe’s, and the breathlessness and palpitations are shocking. I feel like I’ve run a marathon. Coupled with the steroid induced lack of reality and sleep, I’ve hit a massive massive low, and am struggling to see how I’m going to get through the next two rounds. The recovery time seems to have got a lot shorter the more it’s built up. I absolutely feel your pain and frustration at being laid so low. I really hope it does get better for you, but just be kind to yourself, you really are going through the mill! 

  • Im so sorry to hear that you are struggling so much too. The lack of recovery time before going in for another round is really hard, and doesn’t feel fair. Be kind to yourself too, and maybe speak to your team if things are unmanageable and you’re worried about the next two rounds. They might be able to adjust something to help you. Stay strong.