Hi all
I’ve just been prescribed my ongoing treatment for ER+ breast cancer, following surgery, chemo and radio.
im 39, pre menopausal though periods stopped about halfway through chemo.
ive now found out my plan for hormone therapy etc. 5 yrs of letrazole plus zoladex, and Ademaciclib for two years (I had to push for this as didn’t seem like I would be offered it as standard, despite 55mm tumour and 2 lymph nodes). I’ve got two questions that I can’t seem to get to the bottom of!
- I’ve seen others online who have been given tamoxifen rather than letrazole when my age, even in combo with Abemaciclib. My oncologist said that even though I’m pre menopausal, I have to have the letrazole if I want to also have the Ademaciclib. But this isn’t consistent with what I’ve seen others be prescribed.
- I asked my onc about having Zometa bone infusions along with the letrazole to help prevent osteperosis. She said bone infusions are only given IF I develop osteoporosis, rather than to prevent it from the outset. Again, this is inconsistent with what I’ve seen from a friend who has identical diagnosis to me. She is getting the bone infusions straight away, to prevent. She is on private healthcare so I’m wondering if this is why there is a difference?
my oncologist, who I’ve only met once and whom I’ve only had about 20 minutes of her time, is always in such a rush to tell me the headline info and rarely gives me time to talk things through or ask questions so I’m wondering if anyone can help here. Unfortunately I feel a bit fobbed off and like ‘all the stops’ aren’t being pulled out (whether it’s for cost reasons or whatever) by my onc. She’s also notoriously hard to get hold of so wanted to see if anyone else could share their experiences with these drug combos before I move forward.
thank you x
