Hi everyone,
I have just finished my last chemo session and wanted to share my experiance in case it’s of help to anyone starting on their BC journey. Overall really positive, sorry it’s a bit wordy.!
Potted History
small early stage tumor pick up by routine mammogram at the beginning of November, originally diagnosed as invasive lobular cancer so had to have an MRI, the wait for the results was the worst time for me. Thankfully it hadn’t spread anywhere and op was booked for 16 Jan. ( lumpectomy and a few lymph nodes removed)
I didn’t get my Her2 results until the day of the operation and they came back positive, this really freaked me out as I wasn’t expecting to have chemo.
At the follow up I was told it wasn’t lobular but ductal
Started chemo 4 weeks later - 12 sessions weekly of paclitaxel and herceptin every 3 weeks.
So that brings me today, I can honestly say it hasn’t been as bad as I feared ( I do appreciate that it is not the same for everyone and I really feel for those of you who are suffering) .
I have cold capped throughout and I’ve retained about 90% of my hair. I used the Daniel Field booster system, no idea if it has helped. It is pleasant, no, is it manageable, I think so. If you can get through the first 5 mins it becomes bearable. I found a guided breathing exercise on instagram and did that and also took a couple of pain relive tablets an hour before they put the cap on, both helped.
iI also used Suzzi Pad cold gloves and socks to prevent neuropathy, during the chemo infusion, so far so good, no issues.
I worked throughout it, I had my chemo on a Tuesday and feel great on a Wednesday, lots of energy, this would decline over the following days but it still wasn’t to bad. I slept when I was tired and if I needed a disco nap I would have one. I am also hungry all the time, that’s the steroids for you. I’ve put on over half a stone 4kg but I will deal with that later.
I didn’t feel sick at all thankfully.
I did get a few mouth ulcers and the corners of my mouth became very sore and I’ve also had achy legs but both were manageable for me.
It had felt like an incredibly long time to get to today and while it’s not the end of my journey as I still have radiotherapy, herceptin every 3 weeks until Feb and hormone treatment to go, I am proud to have reached this milestone, tomorrow is the beginning of renewed strength and brighter days.
To anyone who is about to start treatment, I wish you the best and hope like me the side effects are less than you fear, cancer treatment really has come a long way and if you have any questions then please reach out.
M
Hi Marietta,
Thank you for providing such an encouraging overview of your experience.
My treatment plan is exactly the same as yours was (bar the fact I had to have an re-excision after lumpectomy). I had my first Paclitaxel and Herceptin yesterday. Used Daniel Field products and cold capped for my hair. Really hoping they do some good! Felt a bit wired from the steroids last night and didn’t sleep much. But felt really energetic today, which is not what I was expecting. I imagine this is also linked to steroids, but I was pleasantly surprised . Waiting for a crash tomorrow
I did buy the cold gloves and socks, but sent them back as my hospital doesn’t typically use them. Instead am trying compression socks and (surgical) gloves instead, which I’ve heard can also prevent neuropathy.
Here’s hoping I have as positive experience as you have had overall on this journey
Hope you have completed all your treatment now and returned to “real life”. Thanks for sharing your story xx
I really hope they go well for you and that you get good results from the cold cappinG
Listen to your body and do things that make you smile
Thank you. Today has been harder than yesterday, but I feel better now that the chemo is started and I know more what I’m facing. How are you feeling now? Did you manage to retain you hair and is it growing ok? I’m slightly obsessed with hair!
I am doing good, I’ve got three more Herceptin injections to go but I got a clear mammogram at my one year check.
I keep nearly all my hair, no bald patches or anything during chemo or radiotherapy. I lose some and it did thin a bit when I started Letzerole but that stoped after about 4 months and now back to normal.
I become paranoid about losing it but when I hadn’t lost any by week 4 the nurses said it would be unlikely that I would.
I used the simple brand shampoo and conditioner and would wash my hair after chemo and then at the weekend. I had my roots colored twice using Daniel Fields water based colour which worked really well.
Whatever cancer throws your way, we’re right there with you.
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